Version: 1.0.0 | Published: 26 Nov 2024 | Updated: 179 days ago
Documentation
Associated Media:
Description:
Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials.
The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we’ve gathered so far (December 2024) includes clinical measurements from 1,025,498 participants.
The current data available contains responses from our baseline health questionnaire only and an indicator if a blood sample was provided and stored. The current data is split into 2 categories:
• participant data - which contains baseline demographic information collected across all consented participants
• questionnaire data - which contains self-reported health information, details about participants" household, socioeconomic status, work and education history, and family history
A separate, linked dataset is available with includes genotype array data on 700,138 variants from a subset of 66,520 participants.
Additional linked datasets are available:
- ‘Baseline Health Questionnaire Data’ which contains baseline demographic information and responses to our health questionnaire from 1,414,260 participants.
- ‘Linked NHS England Health Records Data which contains linked clinical data from NHS England for 1,151,453 participants.
- ‘Genotype Array Data’ which includes genotype array data on 707,522 variants from a subset of 651,050 participants
The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it’s available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they"re given access to the data.
We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.
Coverage
Spatial:
United Kingdom
Typical Age Range:
18-150
Follow Up:
0 - 6 Months
Pathway:
Not applicable
Provenance
Origin
Purposes:
Study
Sources:
Other
Collection Situations:
Clinic
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
11 December 2024
Start Date:
01 May 2021
End Date:
15 October 2024
Time Lag:
Other
Accessibility
Access
Access Service:
The Our Future Health Trusted Research Environment (TRE) is a highly secure
computing environment, where researchers can access the Our Future Health data
they have applied for. The TRE is subject to rules, monitoring, and strict
controls to protect the data and participants" privacy. The Our Future Health
TRE has a range of tools available for analysing the data. More information is
available here: https://research.ourfuturehealth.org.uk/analysing-the-data/ If
you think our TRE will not be able to meet your research needs, for example, if
you’ve developed complex software or analytical tools that would be hard to
recreate, you can apply to access the data using a different TRE.
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
Our Future Health
Data Processor:
None
Usage
Data Use Limitations:
Research use only
Data Use Requirements:
- Project-specific restrictions
- Geographical restrictions
- Return to database or resource
- Time limit on use
- User-specific restriction
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
csv, tsv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Persons who consented to joining Our Future Health and clinical measurements taken.
1025498
Count
14 October 2024