Version: 1.0.0 | Published: 26 Nov 2024 | Updated: 555 days ago
Documentation
Associated Media:
Description:
Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials.
The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we’ve gathered so far (May 2026) includes clinical measurements from 1,518,202 participants.
Point-of-Care Testing (POCT) lipid profile measurements were also collected during appointments from July 2022 until December 2024. This dataset includes measurements from 1,159,273 participants.
Additionally, there are also a number of linked datasets available including:
• Participant data, which contains information on participant sex, gender, ethnicity, month and year of birth, consent version, month and year of consent, month and year of registration, blood sample
• Self-reported baseline questionnaire data, which contains information of socio-economic, lifestyle and individual and family health
• Genetic data, which includes both genotyping array and imputed genetic data in two file formats (pVCF and BGEN format), and files with sample QC, kinship, ancestry and PCA loadings information
• Participant geographies data for all devolved nations including small area statistical zones such as LSOA, MSOA and Intermediate Zones
• Linked health records data for participants receiving care in England, including HES, cancer registry and deaths
The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it’s available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they"re given access to the data.
We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.
Coverage
Spatial:
United Kingdom
Typical Age Range:
18-150
Follow Up:
0 - 6 Months
Pathway:
Not applicable
Provenance
Origin
Purposes:
Study
Sources:
Other
Collection Situations:
Clinic
Temporal
Accrual Periodicity:
Biannual
Distribution Release Date:
28 May 2026
Start Date:
07 December 2022
End Date:
23 March 2026
Time Lag:
Other
Accessibility
Access
Access Service:
The Our Future Health Trusted Research Environment (TRE) is a highly secure
computing environment, where researchers can access the Our Future Health data
they have applied for. The TRE is subject to rules, monitoring, and strict
controls to protect the data and participants' privacy. The Our
Future Health TRE has a range of tools available for analysing the data. More
information is available here:
https://research.ourfuturehealth.org.uk/analysing-the-data/ If you think our TRE
will not be able to meet your research needs, for example, if
you've developed complex software or analytical tools that
would be hard to recreate, you can apply to access the data using a different
TRE.
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
Our Future Health
Data Processor:
None
Usage
Data Use Limitations:
Research use only
Data Use Requirements:
- Project-specific restrictions
- Geographical restrictions
- Return to database or resource
- Time limit on use
- User-specific restriction
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
csv, tsv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Persons who consented to joining Our Future Health and having Point-of-Care Testing (POCT) done.
1159273
Count
31 December 2024
Persons
Persons who consented to joining Our Future Health and clinical measurements taken.
1518202
Count
23 March 2026