Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Description:
There are two data sets of eye scans available. The first of these is a set fundus images of which the are c. 7.0 million. The other is a set of OCT scans of which there are c. 440, 000.
This dataset contains routine clinical ophthalmology data for every patient who have been seen at Queen Elizabeth Hospital and the Birmingham, Solihull and Black Country Diabetic Retinopathy screening program at University Hospitals Birmingham NHS Foundation Trust, with longitudinal follow-up for 15 years. Key data included are:
• Total number of patients.
• Demographic information (including age, sex and ethnicity)
• Past ocular history
• Intravitreal injections
• Length of time since eye diagnosis
• Visual acuity
• The national screening diabetic grade category (seven categories from R0M0 to R3M1)
• Reason for sight and severe sight impairment
Geography
University Hospitals Birmingham is set within the West Midlands and it has a catchment population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.
Data source: Ophthalmology department at Queen Elizabeth Hospital, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200,000 patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic screening scheme in Europe.
Pathway: The routine secondary care follow-up in the hospital eye services for all ophthalmic diseases at Queen Elizabeth Hospital. The Birmingham, Solihull and Black Country dataset is representative of the patient pathway for community screening and grading of diabetic eye disease.
Coverage
Spatial:
United Kingdom,England,West Midlands
Typical Age Range:
0-110
Follow Up:
6 - 12 Months
Pathway:
Views of the retina are core to the Diabetic Retinal Screening Programme and as
such are a record of the patient, and provide the evidence to a retinopathy
grade
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
- Secondary care - Outpatients
- Community
Temporal
Accrual Periodicity:
Continuous
Distribution Release Date:
31 March 2020
Start Date:
01 January 2007
End Date:
15 December 2019
Time Lag:
2-4 weeks
Accessibility
Access
Access Rights:
Access Service:
INSIGHT is developing it"s data access environment for researchers. Until such
time INSIGHT releases anonymised data,under data licence, into external secure
environments.
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GBN
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Usage
Data Use Limitations:
General research use
Data Use Requirements:
Project-specific restrictions
Format and Standards
Vocabulary Encoding Schemes:
NHS NATIONAL CODES
Languages:
en
Formats:
- JPEG
- DICOM
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
-1
Count
31 March 2020