Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
The Moorfields DR Dataset encompasses all patients who have been referred via the NHS diabetic eye screening program (DESP) to Moorfields Eye Hospital - a leading provider of eye health services in the UK and a world-class centre of excellence for ophthalmic research and education.
The DESP invites all diabetic patients aged 12 years or over to annual primary-care-based screening. Here, two-field fundus photography (one image centred on the macula and a second image centred on the optic disc) is acquired and graded according to the English Screening Programme for Diabetic Retinopathy standards. If criteria were met (R2, R3, R3, M1, or ungradable), patients are referred to hospital eye services and suspended from screening while under secondary care. Urgently referred patients (retinopathy grade R3) are to be seen within 2 weeks, and routinely referred patients within 10 weeks.
The earliest available screening records are from 2013, however, the dataset will include any imaging or clinical metadata that is available for these patients prior to that time (for example in patients who were initially monitored for the early manifestations of the disease). Also of note, this dataset will include data from both eyes in each case. For these reasons, the dataset will include longitudinal data from a wide range of diabetic eye disease.
Clinical metadata includes information regarding:
- patient demographics
- visual acuities (predominantly measured with Early Treatment Diabetic Retinopathy Study (ETDRS) charts)
- diabetic retinopathy grading
- intravitreal therapies and ocular surgeries
Additional information is provided in the ‘technical details’ tab.
The DR dataset includes eye imaging modalities, such as:
- Optical coherence tomography (CSO, Heidelberg, Optos, Topcon, Zeiss)
- Colour fundus photographs (Topcon, Zeiss)
- Ultra-wide field photographs (Optos, Zeiss)
- Iris photographs (CSO, Zeiss)
- Keratoscope topography (CSO)
- Infrared photographs (Heidelberg, Topcon, Zeiss)
- Fluorescein angiography (Heidelberg, Optos, Topcon, Zeiss)
- Indocyanine green angiography (Heidelberg, Optos, Topcon)
- Fundus autofluorescence (Heidelberg, Optos, Zeiss)
Imaging data from CSO is subject to additional approvals.
As of July 2024, the dataset consisted of 91,009 eyes with 445,792 screening readings, and over 5,537,798 ophthalmic images. This is one of the largest single centre databases from patients with DR and covers more than a decade of follow-up for these patients.
Coverage
Typical Age Range:
16-100
Follow Up:
> 10 Years
Pathway:
The dataset is representative of the entire pathway for patients receiving
treatment for diabetic retinopathy (DR) in the Medical Retina service at
Moorfields Eye Hospital NHS Foundation Trust.
Provenance
Origin
Purposes:
Study
Collection Situations:
- Clinic
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
Temporal
Accrual Periodicity:
Continuous
Start Date:
01 January 2003
Time Lag:
1-2 weeks
Accessibility
Access
Access Rights:
Access Service:
INSIGHT is developing its data access environment for researchers. INSIGHT
releases anonymised data, under strict data licence arrangements, to external
secure environments, subject to appropriate due diligence and contracting.
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
Moorfields Eye Hospital NHS Foundation Trust
Usage
Data Use Limitations:
General research use
Data Use Requirements:
Project-specific restrictions
Resource Creators:
INSIGHT Health Data Hub
Format and Standards
Vocabulary Encoding Schemes:
- SNOMED CT
- DM+D
- NHS NATIONAL CODES
Languages:
en
Formats:
- csv
- image
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
91,193 Eyes with 5,537,798 Images
91,009 Eyes with 445,792 Readings
45824
Patients
01 July 2024