Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Description:
The Moorfields Eye Dementia Dataset is a large longitudinal multimodal dataset derived from routinely collected data acquired as part of patient care in units under the provisions of Moorfields Eye Hospital NHS Foundation Trust (MEH). This includes sociodemographic and clinical data recorded through the Trust information health systems on all individuals aged 18. The dataset contains individuals who have an image at at least 40. In addition, tabular data on imaging including imaging characteristics and clinically relevant quantifiable indices (e.g. retinal vascular tortuosity) are provided from select processing algorithms.
Coverage
Spatial:
United Kingdom,England,London
Typical Age Range:
40-150
Follow Up:
Unknown
Pathway:
"The data is derived from routinely collected data as part of patient care at
Moorfields Eye Hospital NHS Foundation Trust. It is representative of urban
(ethnically and socioeconomically diverse) populations attending hospital eye
services. Referrals to hospital eye services primarily come from either primary
care (GPs and community optometry), the national screening service for diabetic
eye disease, and emergency attendances to the Trust accident & emergency
department. As a tertiary level unit for certain eye diseases, the Trust also
receives referrals for rare eye disease, including inherited retinal disease,
intraocular inflammation and ocular oncology."
Provenance
Origin
Purposes:
Care
Collection Situations:
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
- Clinic
Temporal
Accrual Periodicity:
Other
Start Date:
01 January 2000
Time Lag:
Not applicable
Accessibility
Access
Access Rights:
Access Service:
We provide a Secure Research Enviroment from which the data can be securely
accessed. The cost of the environment will depend on the compute level required.
Access Request Cost:
There is a cost assoiated with dataset access, this cost is subject to the Data
use application
Delivery Lead Time:
Not applicable
Jurisdictions:
GB
Data Controller:
NHS data controller - Moorfields
Data Processor:
Insight at Moorfields
Usage
Data Use Limitations:
- General research use
- No general methods research
Data Use Requirements:
- Not for profit use
- Return to database or resource
- Time limit on use
- Project-specific restrictions
Resource Creators:
Insight at Moorfields
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
text/csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
unique images within dataset
2480000
Count
10 September 2024
Persons
All unique patients within the dataset
232000
Count
10 September 2024