Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 424 days ago
Our Future Health Linked Health Records Data
Dataset
Documentation
Associated Media:
Description:
Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials.
The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we've gathered so far (September 2025) includes linked NHS England clinical data on 1,703,250 participants
Additional linked datasets are available:
- 'Baseline Health Questionnaire Data' which contains baseline demographic information and responses to our health questionnaire from 1,900,494 participants.
- 'Genotype Array Data' which includes genotype array data on 707,522 variants from a subset of 650,870 participants
- Clinical Measurements Data which contains clinical data from 1,433,275 participants.
The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it's available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they're given access to the data.
We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.
Coverage
Spatial:
United Kingdom
Typical Age Range:
18-150
Follow Up:
Other
Provenance
Origin
Purposes:
Study
Collection Situations:
- Secondary care - In-patients
- Other
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
18 September 2025
Start Date:
30 April 2021
End Date:
10 June 2025
Time Lag:
Variable
Accessibility
Access
Access Service:
The Our Future Health Trusted Research Environment (TRE) is a highly secure
computing environment, where researchers can access the Our Future Health data
they have applied for. The TRE is subject to rules, monitoring, and strict
controls to protect the data and participants' privacy. The Our Future
Health TRE has a range of tools available for analysing the data. More
information is available here:
https://research.ourfuturehealth.org.uk/analysing-the-data/ If you think our TRE
will not be able to meet your research needs, for example, if you've
developed complex software or analytical tools that would be hard to recreate,
you can apply to access the data using a different TRE.
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
Our Future Health
Data Processor:
None
Usage
Data Use Limitations:
Research use only
Data Use Requirements:
- Project-specific restrictions
- Geographical restrictions
- Return to database or resource
- Time limit on use
- User-specific restriction
Resource Creators:
Our Future Health
Format and Standards
Vocabulary Encoding Schemes:
- ICD10
- OPCS4
- READ
Languages:
en
Formats:
csv, tsv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NDRS Cancer Registry Treatment records.
372910
Count
20 June 2024
Events
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS Outpatient (HES OP) records - Outpatient appointments at NHS hospitals in England.
56354960
Count
31 March 2025
Events
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NDRS Cancer Researcher Patient Tumour records.
168315
Count
31 December 2022
Events
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to National Disease Registration Service (NDRS) Cancer Pathways.
9319639
Count
21 July 2021
Events
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to Admitted Patient Care (HES APC) records - Episodes of care where a participant is admitted at NHS hospitals in England.
8588034
Count
31 March 2025
Events
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS HES A&E records - Attendances recorded at major A&E departments, single specialty A&E departments, walk-in centres, and minor injury units.
4346064
Count
31 March 2020
Events
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to NHS and Office of National Statistics Death Registration records for England and Wales.
3839
Count
11 June 2025
Persons
Persons who consented to joining Our Future Health with a completed questionnaire and have been linked to their health records through NHS England.
1703250
Count
07 July 2025