Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Summary
DOI Name:
10.6084/m9.figshare.22094015.v1
Documentation
Description:
The dataset includes patients either diagnosed with pancreatic cancer (PC) or deemed at risk of PC. Risk factors include certain, clinician-validated features such as previous GI referrals, chronic pancreatitis diagnosis etc. The dataset includes both patient level demographic, inpatient/outpatient and laboratory data. The variables included have been carefully identified as being potentially risk factors for PC. Data has been sourced from Manchester Foundation Trust systems, and is patient level.
Coverage
Spatial:
United Kingdom,England,North West,Manchester
Typical Age Range:
0-150
Pathway:
NA
Provenance
Origin
Sources:
EPR
Collection Situations:
- Secondary care - Outpatients
- Secondary care - In-patients
- Clinic
Temporal
Accrual Periodicity:
Irregular
Start Date:
15 May 2003
Time Lag:
Less than 1 week
Accessibility
Access
Access Rights:
In Progress
Access Service:
In progress. MFT have both on-premise and cloud solutions for accessing data.
Each application will be assessed on a case-by-case basis.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
NHS Manchester Foundation Trust
Data Processor:
Clinical Data Science Unit - MFT
Usage
Data Use Limitations:
Research use only
Data Use Requirements:
Institution-specific restrictions
Resource Creators:
NHS Manchester Foundation Trust
Format and Standards
Vocabulary Encoding Schemes:
ICD10
Languages:
en
Formats:
- csv
- sql
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Data comprised of two cohorts - pancreatic cancer patients, pancreatic cancer at-risk patients
54736
Count
14 February 2023