Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
The Aberdeen Children of the 1950s (ACONF) is a dataset gathered through a longitudinal study from 12 150 participants born in Aberdeen between 1950 - 1956 that was repeated in 1990s, 2000s and is still ongoing. The most recent part of the study was conducted in 2021 and examined views on Covid-19.
The initial goal was to find the cause of learning disabilities among school children however, the existing dataset contents have been expanded over years to aid research in multiple fields such as health-related studies. The data includes invaluable information about the prevalence of heart disease, pregnancy details, intelligence, schooling, housing, and mental health across the generations.
Back in the 1950"s, children in Aberdeen primary schools were tested by the University of Aberdeen with the Aberdeen Child Development Survey (ACDS) in maths and reading tests in December 1962. Four decades later, the survey was sent by post to all the now-adult participants with more questions about their personal life, health and living situation to draw correlation between the examined factors. The study yielded 7000 responses and was enriched by consulting the medical records. It has been possible to confirm vital status and place of residence for 98.5% of the 12,150 subjects from which 81% still lived in Scotland and 73% in the Grampian, including Aberdeen. 1431 subjects have been confirmed to be deceased (as at March 2018).
Linkages to hospital admissions and other health endpoints captured through the routine Scottish Morbidity Records system resulted in links to 41,159 hospital admission records, 1,258 cancer registrations and 1,084 psychiatric admissions (as at March 2008) and include an intergenerational linkage to 7928 deliveries in Scotland occurring to female members of the study population. A postal questionnaire to all surviving cohort members has also been distributed in 2001, with a response success rate of 63%.
Coverage
Spatial:
United Kingdom,Scotland,Aberdeen City; United Kingdom,Scotland,Aberdeenshire
Typical Age Range:
0-72
Follow Up:
Continuous
Pathway:
The dataset contains information relating to Aberdeen Birth Cohorts and contains
main items such as: 1. Reading Survey Data 1962-4 2. Family Survey Data 1964 3.
2001 follow-up questionnaire 4. Tracking and tracing of participants (2001
onwards) 5. Neighbourhood and household level data (1960s) 6. Schools data
Provenance
Origin
Purposes:
Study
Collection Situations:
Community
Temporal
Accrual Periodicity:
Continuous
Start Date:
03 December 1962
Time Lag:
Variable
Accessibility
Access
Access Rights:
Access Service:
The Grampian Data Safe Haven The Grampian Data Safe Haven (DaSH) is a secure,
virtual healthcare data analysis and storage centre established by the
University of Aberdeen and NHS Grampian to allow for the secure processing and
linking of health data for the Grampian and Scottish population when it is not
practicable to obtain consent from individual patients. The DaSH Research
Coordinators can provide advice and support in obtaining the required approvals
for DaSH projects. A Permissions Pathway guide explaining the approvals process
for DaSH projects is also available. In addition, DaSH has some template
application forms with pre-populated information about DaSH that can be used by
researchers during the permission application process as appropriate. DaSH
technology ensures unconsented healthcare, social data and other types of
sensitive data are accessible for research and clinical purposes whilst
protecting individuals’ privacy. Our ethos is built on working with clinicians,
researchers and industry partners to improve health and social care by providing
a safe and secure environment and enabling cutting-edge research. The Grampian
Data Safe Haven offers bespoke data storage, processing and linkage services
based on the individual needs of your research project. The DaSH team works with
researchers to provide detailed project planning and data management support
whilst ensuring adherence to the highest standards of security and governance
and protecting patient confidentiality. Each project is supported by a Research
Coordinator and Data Analyst to ensure projects adhere to permissions and
outputs meet the project specification and comply with information security
regulations. If you require non-DaSH-held datasets, we can assist with obtaining
the relevant approvals, as well as coordinating the request with the data
custodians and linkage between datasets.
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-SCT
Data Controller:
The members of the steering group for the "Children of the 1950s" cohort study
involve collaboration between representatives of Dugald Baird Centre, University
of Aberdeen and London School of Hygiene & Tropical Medicine, the MRC Social and
Public Health Sciences Unit, University of Glasgow, and the Department of Social
Medicine, University of Bristol. The study administrator, Heather Clark,
oversees applications for access to the ACONF data. Please contact Heather at
h.clark@abdn.ac.uk or +44 (0)1224 437288 if you would like more information on
the study variables, or if you are interested in submitting an application to
the steering committee.
Data Processor:
Grampian Data Safe Haven (DaSH) Given steering committee approval, work with
ACONF data requires a rigorous permission process and vetting of data security.
Work on ACONF data is carried out in the Grampian Data Safe Haven (DaSH). DaSH
provides advice on the linkage process as well as a safe facility for conducting
research with linked data.
Usage
Data Use Limitations:
Research use only
Data Use Requirements:
Ethics approval required
Resource Creators:
University of Aberdeen
Format and Standards
Vocabulary Encoding Schemes:
ICD10
Languages:
en
Formats:
Text
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
12150
Count
03 December 1962