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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago

South East Scotland Cancer Database - Core Oncology Dataset

Dataset

Documentation

Description:
SESCD oncology data is recorded and curated by a dedicated team of clinical coders using paper-based patient case notes, electronic patient records, Scottish morbidity registers, and secondary healthcare databases. In addition, there are a number of automatic feeds from various national, regional and bespoke databases and EPRs which are quality checked by the coding team. Clinical expertise is provided by a dedicated team of clinical and research professionals.

Coverage

Spatial:
United Kingdom,Scotland,City of Edinburgh; United Kingdom,Scotland,East Lothian; United Kingdom,Scotland,Midlothian; United Kingdom,Scotland,West Lothian; United Kingdom,Scotland,Dumfries and Galloway; United Kingdom,Scotland,Scottish Borders; United Kingdom,Scotland,Fife
Typical Age Range:
0-150
Follow Up:
Continuous
Pathway:
Integrated care record covering the whole cancer patient pathway from initial diagnosis to death.

Provenance

Origin

Collection Situations:
  • Clinic
  • Secondary care - Outpatients
  • Secondary care - In-patients
  • Services
  • Prescribing - Community pharmacy
  • Other

Temporal

Accrual Periodicity:
Continuous
Start Date:
01 January 1974
Time Lag:
Variable

Accessibility

Access

Access Service:
Researchers define their cohort and time period and select from a list of available data variables. Analysts will retrieve the data and make it available as an Excel file.
Access Request Cost:
Available on request
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-SCT
Data Controller:
NHS Lothian
Data Processor:
NHS Lothian

Usage

Data Use Limitations:
  • Project-specific restrictions
  • Research-specific restrictions
Data Use Requirements:
  • Project-specific restrictions
  • Disclosure control
Resource Creators:
NHS Lothian

Format and Standards

Vocabulary Encoding Schemes:
  • LOCAL
  • OPCS4
  • ICD10
  • ICD10CM
  • ICDO3
Languages:
en
Formats:
  • application/sql
  • text/csv

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Cancer patients in the South East of Scotland
163788
Count
24 August 2022