Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 226 days ago
Documentation
Description:
The Brain Health Data Pilot (BHDP) project aims to be a shared database (like a library) of information for scientists studying brain health, especially for diseases like dementia, which affects about 900,000 people in the UK. Its main feature is a huge collection of brain images linked to routinely collected health records, both from NHS Scotland, which will help scientists learn more about dementia and other brain diseases. What is special about this database is that it will get better over time – as scientists use it and add their discoveries, it becomes more valuable.
This is a subset of the Outpatient Appointment and Attendances (SMR00) dataset for use in the Brain Health Data Pilot (BHDP) project.
An SMR00 is generated for outpatients receiving care in the specialties listed when:
-they attend a medical consultant outpatient clinic;
-they meet with a consultant or senior member of his/her team outwith an outpatient clinic session (including the patient"s home).
-they attend a clinic run by a nurse or an AHP identified as the Health Care Professional Responsible for Care for that clinic and who has legal and clinical responsibility for that patient.
The dataset is generally fully complete and ready for analysis three month preceding the current date. So for example at the end of August, data is available until the end of May.
Coverage
Spatial:
United Kingdom,Scotland
Typical Age Range:
0-150
Follow Up:
Other
Pathway:
All of secondary care in relation to appointments and attendances
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
Secondary care - Outpatients
Temporal
Accrual Periodicity:
Static
Distribution Release Date:
17 June 2014
Start Date:
01 January 2000
End Date:
09 May 2024
Time Lag:
Not applicable
Accessibility
Access
Access Service:
Scottish National Safe Haven / Trusted Research Environment:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Brain Health Data Pilot Study
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB
Data Controller:
Public Health Scotland
Data Processor:
National Services Scotland
Usage
Data Use Limitations:
Research-specific restrictions
Data Use Requirements:
- Institution-specific restrictions
- Not for profit use
- Collaboration required
- Geographical restrictions
Resource Creators:
National Services Scotland ;,;Public Health Scotland
Format and Standards
Vocabulary Encoding Schemes:
NHS SCOTLAND NATIONAL CODES
Languages:
en
Formats:
- text
- csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of Records
11206149
Count
17 June 2024
Persons
Outpatient admissions
820959
Count
17 June 2024