Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Description:
The neuropathic pain profiling in retroviral infection Study: The NIPPR Study. This study contains pain related information reported by people living with Human T-lymphotropic cell virus (HTLV-1) infection. It includes those with and without neuropathic pain.
NIPPR is a cross sectional deep profiling study examining sensory profiles and patient reported outcome measures. It also includes skin biopsy data. 22/40 participants have currently been recruited. It includes multiple measures including:
• Patient reported pain outcome measures
• Sites of pain
• Psychophysical pain measures (quantitative sensory testing and conditioned pain modulation)
• Intra-epidermal nerve fibre density
• Patient reported measures of mood, sleep, quality of life and function.
Coverage
Typical Age Range:
0-150
Follow Up:
Unknown
Provenance
Origin
Purposes:
Study
Sources:
Other
Collection Situations:
Other
Temporal
Accrual Periodicity:
Static
Start Date:
28 October 2021
Time Lag:
Not applicable
Accessibility
Access
Access Rights:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
Imperial College London
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
Spreadsheet
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
The study aims to recruit 40 patients in total
40
Count
28 October 2021