Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Summary
DOI Name:
10.2147/POR.S395632
Documentation
Associated Media:
Description:
About OPCRD
Optimum Patient Care Research Database (OPCRD) is a real-world, longitudinal, research database that provides anonymised data to support scientific, medical, public health and exploratory research. OPCRD is established, funded and maintained by Optimum Patient Care Limited (OPC) – which is a not-for-profit social enterprise that has been providing quality improvement programmes and research support services to general practices across the UK since 2005.
Key Features of OPCRD
OPCRD has been purposefully designed to facilitate real-world data collection and address the growing demand for observational and pragmatic medical research, both in the UK and internationally. Data held in OPCRD is representative of routine clinical care and thus enables the study of ‘real-world’ effectiveness and health care utilisation patterns for chronic health conditions.
OPCRD unique qualities which set it apart from other research data resources:
• De-identified electronic medical records of more than 24.4 million patients
• OPCRD covers all major UK primary care clinical systems
• OPCRD covers approximately 35% of the UK population
• One of the biggest primary care research networks in the world, with over 1,175 practices
• Linked patient reported outcomes for over 68,000 patients including Covid-19 patient reported data
• Linkage to secondary care data sources including Hospital Episode Statistics (HES)
Data Available in OPCRD
OPCRD has received data contributions from over 1,175 practices and currently holds de-identified research ready data for over 24.4 million patients or data subjects. This includes longitudinal primary care patient data and any data relevant to the management of patients in primary care, and thus covers all conditions. The data is derived from both electronic health records (EHR) data and patient reported data from patient questionnaires delivered as part of quality improvement. OPCRD currently holds over 68,000 patient reported questionnaire data on Covid-19, asthma, COPD and rare diseases.
Approvals and Governance
OPCRD has NHS research ethics committee (REC) approval to provide anonymised data for scientific and medical research since 2010, with its most recent approval in 2020 (NHS HRA REC ref: 20/EM/0148). OPCRD is governed by the Anonymised Data Ethics and Protocols Transparency committee (ADEPT). All research conducted using anonymised data from OPCRD must gain prior approval from ADEPT. Proceeds from OPCRD data access fees and detailed feasibility assessments are re-invested into OPC services for the continued free provision of patient quality improvement programmes for contributing practices and patients.
For more information on OPCRD please visit: https://opcrd.co.uk/
Coverage
Spatial:
United Kingdom
Typical Age Range:
0-150
Follow Up:
> 10 Years
Pathway:
The dataset contains primary care data and is soon to be linked to secondary
care data.
Provenance
Origin
Collection Situations:
- Primary care - Clinic
- Other
Temporal
Accrual Periodicity:
Continuous
Start Date:
13 February 2008
Time Lag:
1-2 months
Accessibility
Access
Access Rights:
Access Service:
To submit your application for data from OPCRD, please email
datarequest@optimumpatientcare.org with your request. Please include: The
organisation requesting data Researcher contact point Data analysis deadline The
funding source ADEPT Approval/Protocol Number – If Available ENCEPP Registration
Number – If Available All licensed data will be accessible through a secure VPN
connection to a client-dedicated SQL database server.
Access Request Cost:
Delivery Lead Time:
2-4 weeks
Jurisdictions:
- GB-ENG
- GB-SCT
- GB-WLS
- GB-NIR
Data Controller:
Optimum Patient Care UK
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Project-specific restrictions
- Publication required
- Time limit on use
- User-specific restriction
Resource Creators:
Optimum Patient Care (OPC)
Format and Standards
Vocabulary Encoding Schemes:
- READ
- SNOMED CT
- SNOMED RT
- DM+D
Languages:
en
Formats:
- application/sql
- text/csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
The total number of patient records in the dataset.
24442031
Count
15 November 2024