Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Description:
The UK Parkinson’s Audit assesses care provided to people with Parkinson"s by a range of clinical specialities against evidence-based guidelines.
The audit of patient management covers elderly care and neurology services and the routine care they provide to people in connection with their Parkinson’s. Services submit data on their model of service delivery and the assessments which are routinely carried out (service audit) and data on the care provided over the last 12 months to at least twenty of their consecutive patients seen during the five-month data collection period (patient audit). No patient identifiers are collected.
The audit is open to services across the UK which see patients for the routine review of their Parkinson’s - secondary care (non-acute) and community services. A service is self-defined - for example an individual consultant, a consultant and a specialist nurse, a group of consultants seeing the same cohort of patients, or a specialist nurse working in a community setting. There can therefore be more than one service taking part in any Trust or hospital.
The 2019 audit includes data from 266 elderly care and neurology services covering 6256 patient cases.
The data is available by UK Parkinson’s Excellence Network region. The UK Parkinson"s Excellence Network is a network of health and social care professionals working to improve Parkinson"s services administered with support from Parkinson’s UK. Professionals can join the Network to access resources, increase their knowledge of Parkinson"s and collaborate with people affected by Parkinson"s to transform health and care services.
The audit is the recognised quality improvement tool for the Excellence Network, providing an important baseline against which progress can be measured, informing national, regional and local service improvement priorities and plans to achieve better services for people living with the condition.
The regions are:
England:
Cheshire and Merseyside
East of England
East Midlands
Greater Manchester, Lancashire and South Cumbria
London
North East and Cumbria
Peninsula
South East Coast
South West
Thames Valley
Wessex
West Midlands
Yorkshire and Humber
Scotland:
North Scotland
South and East Scotland
West Scotland
Northern Ireland:
Northern Ireland
Wales:
North and Mid Wales
South Wales
Other:
Guernsey
Isle of Man
Republic of Ireland
Information about the regions can be found here: https://www.parkinsons.org.uk/professionals/local-parkinsons-excellence-network-groups
Coverage
Spatial:
United Kingdom
Typical Age Range:
20-99
Follow Up:
6 - 12 Months
Pathway:
Single specialty - either elderly care or neurology (non acute), secondary care
and community services
Provenance
Origin
Purposes:
Audit
Sources:
Electronic survey
Collection Situations:
Services
Temporal
Accrual Periodicity:
Other
Distribution Release Date:
31 January 2020
Start Date:
01 May 2019
End Date:
30 September 2019
Time Lag:
Not applicable
Accessibility
Access
Access Rights:
Access Service:
The audit team at Parkinson"s UK will respond to all requests for access to this
data within 5 working days.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GB
Data Controller:
Parkinson"s UK
Usage
Data Use Limitations:
General research use
Resource Creators:
Parkinson's UK
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
Text
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
6256 patient cases are included from 266 elderly care and neurology services
6256
Count
30 September 2019