Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
The UK Parkinson’s Audit assesses care provided to people with Parkinson"s by a range of clinical specialties against evidence-based guidelines. The audit is open to services across the UK - secondary care (non-acute) and community services.
The audit includes a Patient Reported Experience Measure (PREM) which takes the form of a patient questionnaire which can be completed by any individual who attends one of the services (elderly care, neurology, physiotherapy, occupational therapy and speech and language therapy) participating in the audit. The questionnaire can be completed by the person with Parkinson’s or by a carer on their behalf. No patient identifiers are collected.
The PREM questions cover the individual’s experiences of the whole of their Parkinson’s service, not only the specialty which has handed them the questionnaire to complete.
The questionnaire is completed and sealed by the participant - the service does not have sight of the completed questionnaire. Each service must return at least ten questionnaires in order for their PREM data to be included in the analysis.
The 2019 audit received 8,247 completed PREM questionnaires from 451 (77.7%) of the participating services.
The data is available by UK Parkinson’s Excellence Network region. The UK Parkinson"s Excellence Network is a network of health and social care professionals working to improve Parkinson"s services administered with support from Parkinson’s UK. Professionals can join the Network to access resources, increase their knowledge of Parkinson"s and collaborate with people affected by Parkinson"s to transform health and care services.
The audit is the recognised quality improvement tool for the Excellence Network, providing an important baseline against which progress can be measured, informing national, regional and local service improvement priorities and plans to achieve better services for people living with the condition.
The regions are:
England:
Cheshire and Merseyside
East of England
East Midlands
Greater Manchester, Lancashire and South Cumbria
London
North East and Cumbria
Peninsula
South East Coast
South West
Thames Valley
Wessex
West Midlands
Yorkshire and Humber
Scotland:
North Scotland
South and East Scotland
West Scotland
Northern Ireland:
Northern Ireland
Wales:
North and Mid Wales
South Wales
Other:
Guernsey
Isle of Man
Republic of Ireland
Information about the regions can be found here: https://www.parkinsons.org.uk/professionals/local-parkinsons-excellence-network-groups
Coverage
Spatial:
United Kingdom
Typical Age Range:
20-99
Follow Up:
Unknown
Pathway:
The data covers an individual"s experience of their whole Parkinson"s service -
the current service being visited, but also the experience at diagnosis and
whilst an inpatient (where relevant) throughout their lifetime living with
Parkinson"s.
Provenance
Origin
Purposes:
Audit
Sources:
Paper-based
Collection Situations:
- Secondary care - Outpatients
- Community
Temporal
Accrual Periodicity:
Static
Distribution Release Date:
31 January 2020
Start Date:
01 May 2019
End Date:
30 September 2019
Time Lag:
Not applicable
Accessibility
Access
Access Rights:
Access Service:
The audit team at Parkinson"s UK will respond to all requests for access to this
data within 5 working days.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GB
Data Controller:
Parkinson"s UK
Usage
Data Use Limitations:
General research use
Resource Creators:
Parkinson's UK
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
Text
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
8247 patient cases are included submitted by 451
(77.7%) of the services participating in the 2019 UK Parkinson"s Audit.
8247
Count
30 September 2019