Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 227 days ago
Documentation
Description:
The dataset contains patient-level data for adults and children who trigger a laboratory e-alert for an acute kidney injury (AKI) in primary or secondary care in England. The data are collected monthly and include patient identifiable information, and limited socio-demographic and clinical data. Data collection began in 2015 and in 2018, 87% of the 189 laboratories in England submitted data that could be used in the UKRR’s inaugural AKI report that was published in July 2020 (AKI in England – a report on the nationwide collection of AKI warning test scores from 2018). In 2019, 96% of laboratories submitted data. Each year the UKRR collects data on about 500,000 people with a suspected AKI in England - this includes more than 1.5 million AKI e-alerts. This data collection is mandated by NHS England and alerts are generated by an algorithm embedded in the laboratory information management systems. See here for further information: https://renal.org/audit-research/data-permissions/data/ukrr-lab-aki-dataset
Coverage
Spatial:
United Kingdom,England
Typical Age Range:
0-150
Follow Up:
0 - 6 Months
Pathway:
Patients may only experience an acute kidney injury (AKI) once in their life, or
they may have multiple episodes. The AKI lab dataset captures AKI e-alerts for
all children and adults who trigger an AKI alert in both primary and secondary
care in England. Data collection is mandated by NHS England and in 2019 96% of
laboratories submitted data.
Provenance
Origin
Sources:
LIMS
Collection Situations:
- Primary care - Clinic
- Secondary care - Outpatients
- Secondary care - In-patients
- Clinic
- Secondary care - Accident and Emergency
- Community
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
01 June 2021
Start Date:
31 March 2015
Time Lag:
2-6 months
Accessibility
Access
Access Service:
Data are released to researchers who have successfully gone through the UKRR"s
data application process. Prior to any data sharing with successful applicants,
a fixed term data sharing agreement (DSA) is drawn up between the Renal
Association and the recipient. This specifies the scope of the analyses
permitted, the data items to be shared, the frequency of the data sharing, the
names of the researchers and the time limit beyond which data must be destroyed.
Access Request Cost:
Charges may apply for new aggregate data and extracts of pseudonymous patient
level data. The charges are to recover the costs of managing the application
process and preparing extracts of data. The costs depend on the level of service
required from the UKRR and whether this is limited to a simple extract of data,
or requires additional input such as methodological or statistical support. The
UKRR can advise on costs once the expression of interest is received and
applicants may also be requested to complete a costing form.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GB
Data Controller:
The Renal Association
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Project-specific restrictions
- Ethics approval required
- Geographical restrictions
- Time limit on use
- Not for profit use
- User-specific restriction
- Institution-specific restrictions
Resource Creators:
UK Renal Registry, The Renal Association
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
csv or xlsx or sas7bdat
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Since 2015 c. 1.7 million people have triggered a laboratory e-alert for an AKI. Each year the UKRR collects data on about 500,000 people with a suspected AKI in England - this includes more than 1.5 million AKI e-alerts.
1700000
Count
31 December 2019