Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 226 days ago
Documentation
Associated Media:
Description:
The dataset contains patient-level data for adults and children with chronic kidney disease (CKD) or adults with an acute kidney injury (AKI) on dialysis who are under the care of NHS hospital renal centres in England, Northern Ireland and Wales and who have a positive laboratory test for SARS-CoV-2. The data were collected weekly, but this is now moving to monthly, and include patient identifiable information and limited socio-demographic and clinical data. Public Health Scotland submits aggregate data to the UKRR on a monthly basis. Data collection commenced in March 2020 and coverage of renal centres is very good (see COVID-19 surveillance reports here: https://renal.org/audit-research/publications-presentations/report/covid-19-surveillance-reports).
Coverage
Spatial:
United Kingdom,England; United Kingdom,Wales; United Kingdom,Northern Ireland
Typical Age Range:
0-150
Follow Up:
0 - 6 Months
Pathway:
The dataset includes all patients with a positive laboratory test for SARS-COV-2
that are reported to the UK Renal Registry by renal centres in England, Northern
Ireland and Wales.
Provenance
Origin
Collection Situations:
- Clinic
- Secondary care - Outpatients
- Secondary care - In-patients
Temporal
Accrual Periodicity:
Monthly
Distribution Release Date:
28 May 2021
Start Date:
02 March 2020
Time Lag:
2-4 weeks
Accessibility
Access
Access Service:
Data are released to researchers who have successfully gone through the UKRR"s
data application process. Prior to any data sharing with successful applicants,
a fixed term data sharing agreement (DSA) is drawn up between the Renal
Association and the recipient. This specifies the scope of the analyses
permitted, the data items to be shared, the frequency of the data sharing, the
names of the researchers and the time limit beyond which data must be destroyed.
Access Request Cost:
Charges may apply for new aggregate data and extracts of pseudonymous patient
level data. The charges are to recover the costs of managing the application
process and preparing extracts of data. The costs depend on the level of service
required from the UKRR and whether this is limited to a simple extract of data,
or requires additional input such as methodological or statistical support. The
UKRR can advise on costs once the expression of interest is received and
applicants may also be requested to complete a costing form.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GB
Data Controller:
The Renal Association
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Project-specific restrictions
- Ethics approval required
- Geographical restrictions
- Time limit on use
- Not for profit use
- User-specific restriction
- Institution-specific restrictions
Resource Creators:
UK Renal Registry, The Renal Association
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
csv or xlsx or sas7bdat
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Since March 2020, c. 13,000 patients with kidney disease who receive treatment from a renal centre in England, Northern Ireland and Wales have had a positive laboratory test for SARS-CoV-2.
13000
Count
28 April 2021