Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Description:
This dataset comprises summary records of all non-commercial clinical research projects which have been supported* by the National Institute for Research Clinical Research Network [CRN]. The majority of these studies have been coded according to the disease(s) or condition(s) they are investigating. This classification has been done by a clinical coder using ICD10 and HRCS** codes.
Accompanying this information is a list of all the NHS Trusts and GP Practices which have recruited participants for these studies with the number of participants recruited each month. The Trusts and GP Practices are identified by name and ODS Code.
*Studies receive CRN support through a formal process based on criteria set by DHSC (https://www.nihr.ac.uk/documents/eligibility-for-nihr-clinical-research-network-support/23746). For the purposes of this extract it includes all studies added to the NHR CRN Portfolio since 1st January 2008.
**UKCRC Health Research Classification System Health Categories.
Coverage
Spatial:
United Kingdom
Typical Age Range:
0-150
Follow Up:
Other
Pathway:
This dataset is not representative of the patient pathway
Provenance
Origin
Purposes:
Administrative
Sources:
Other
Collection Situations:
Other
Temporal
Accrual Periodicity:
Irregular
Start Date:
01 January 2008
Time Lag:
Less than 1 week
Accessibility
Access
Access Service:
At present, there is no data access environment, but there is a process for
requesting a copy of the dataset. Please use this link:
https://sites.google.com/nihr.ac.uk/nihrcrndatasharing/home to complete a data
access request. On approval of an application for access a file containing the
data will be sent by email to the applicant.
Access Request Cost:
None
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GB
Data Controller:
The Department of Health and Social Care
Data Processor:
National Institute for Health Research Research Clinical Research Network
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- User-specific restriction
- Publication required
Resource Creators:
National Institute for Health Research Research Clinical Research Network
Format and Standards
Vocabulary Encoding Schemes:
- ODS
- ICD10
- LOCAL
- OTHER
Languages:
en
Formats:
Comma Separated Values
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
The data set is concerned with the number of consents to join clinical research which have been taken. Hence the observed node in this case is the consent event. Measured values will increase over time from the baseline recorded here by c. 60k/month
7883974
Count
04 May 2021