Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Associated Media:
Description:
CPRD GOLD linked Quality of Life of Colorectal Cancer Survivors in England: Patient Reported Outcome Measures (PROMs) survey, is a national survey that was commissioned by the Department of Health as a follow-on from the pilot study in July 2011 undertaken to confirm the value of collecting PROMs data on breast, prostate, colorectal and non-Hodgkin’s lymphoma. It includes survey data from 34,467 patients aged 16 years and over with an incident colorectal cancer diagnosis during Jan 2010 Dec 2011. Outcome items in the survey are made up of Euroqol 5-level (EQ-5D), Functional Assessment of Cancer Therapy (FACT), and Social Difficulties Inventory (SDI) items.
Coverage
Spatial:
United Kingdom,England
Typical Age Range:
0-115
Follow Up:
Other
Pathway:
Cancer registration data are collected from a range of health care provider
systems and other services.
Provenance
Origin
Sources:
Electronic survey
Collection Situations:
- Secondary care - In-patients
- Other
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
11 December 2020
Start Date:
01 January 2010
End Date:
31 December 2011
Time Lag:
More than 6 months
Accessibility
Access
Access Rights:
Access Service:
Access to CPRD data, including UK Primary Care Data, and linked data such as
Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research
Data Governance (RDG) Process. Independent scientific and patient advice is
provided by Expert Review Committees (ERCs) and the Central Advisory Committee
(CAC): https://www.cprd.com/research-applications
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
Clinical Practice Research Datalink (CPRD)
Data Processor:
CPRD
Usage
Data Use Limitations:
- General research use
- No linkage
- Research-specific restrictions
- Research use only
Data Use Requirements:
- Geographical restrictions
- Institution-specific restrictions
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creators:
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)
Format and Standards
Vocabulary Encoding Schemes:
OTHER
Languages:
en
Formats:
Tab delimited text
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Number of CPRD GOLD patients matched to a single cancer identifier
901965
Count
06 September 2021