Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 424 days ago
Quality of Life of Cancer Survivors: Pilot Patient Reported Outcomes(Aurum)
Dataset
Documentation
Associated Media:
Description:
CPRD Aurum linked Quality of Life of Cancer Survivors in England: Pilot Survey (2011) was commissioned by the Department of Health as part of the National Cancer Survivorship Initiative (NCSI). The survey was conducted by Quality Health in conjunction with three cancer registries in England. The survey measured the overall quality of life of representative samples of cancer survivors with breast, colorectal cancer, prostate cancer and non-Hodgkin’s lymphoma (NHL) diagnosed during July 2006 - July 2010. Quality of life was assessed at four different time points after diagnosis at approximately one, two, three or five years. As this was a pilot survey, numbers are small and data governance issues will need to be carefully considered on a study by study basis. Outcome items in the survey are made up of Euroqol 5-level (EQ-5D), Functional Assessment of Cancer Therapy (FACT), and Social Difficulties Inventory (SDI) items.
Coverage
Spatial:
United Kingdom,England
Typical Age Range:
0-115
Follow Up:
Other
Pathway:
Cancer registration data are collected from a range of health care provider
systems and other services.
Provenance
Origin
Sources:
Electronic survey
Collection Situations:
- Secondary care - In-patients
- Other
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
11 December 2020
Start Date:
07 January 2006
End Date:
31 July 2010
Time Lag:
More than 6 months
Accessibility
Access
Access Rights:
Access Service:
Access to CPRD data, including UK Primary Care Data, and linked data such as
Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research
Data Governance (RDG) Process. Independent scientific and patient advice is
provided by Expert Review Committees (ERCs) and the Central Advisory Committee
(CAC): https://www.cprd.com/research-applications
Access Request Cost:
Delivery Lead Time:
Variable
Jurisdictions:
GB-ENG
Data Controller:
Clinical Practice Research Datalink (CPRD)
Data Processor:
CPRD
Usage
Data Use Limitations:
- General research use
- No linkage
- Research-specific restrictions
- Research use only
Data Use Requirements:
- Geographical restrictions
- Institution-specific restrictions
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creators:
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)
Format and Standards
Vocabulary Encoding Schemes:
OTHER
Languages:
en
Formats:
Tab delimited text
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Number of CPRD Aurum patients matched to a single cancer identifier
3255865
Count
06 September 2021