Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Associated Media:
Description:
CPRD GOLD linked Cancer Patient Experience Survey (CPES) data include information from patients who have responded to the CPES about their cancer journey from their initial GP visit prior to diagnosis, through diagnosis and treatment and to the ongoing management of their cancer.
Coverage
Spatial:
United Kingdom,England
Typical Age Range:
0-115
Follow Up:
Other
Pathway:
Cancer registration data are collected from a range of health care provider
systems and other services.
Provenance
Origin
Sources:
Electronic survey
Collection Situations:
- Secondary care - In-patients
- Other
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
11 December 2020
Start Date:
01 January 2010
End Date:
31 December 2018
Time Lag:
More than 6 months
Accessibility
Access
Access Rights:
Access Service:
Access to CPRD data, including UK Primary Care Data, and linked data such as
Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research
Data Governance (RDG) Process. Independent scientific and patient advice is
provided by Expert Review Committees (ERCs) and the Central Advisory Committee
(CAC): https://www.cprd.com/research-applications
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
Clinical Practice Research Datalink (CPRD)
Data Processor:
CPRD
Usage
Data Use Limitations:
- General research use
- No linkage
- Research-specific restrictions
- Research use only
Data Use Requirements:
- Geographical restrictions
- Institution-specific restrictions
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creators:
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)
Format and Standards
Vocabulary Encoding Schemes:
OTHER
Languages:
en
Formats:
Tab delimited text
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Number of CPRD GOLD patients matched to a single cancer identifier
901965
Count
06 September 2021