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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 554 days ago

Cancer registration data for CPRD GOLD

Dataset

Summary

DOI Name:
10.48329/9ysk-zx59

Documentation

Description:
CPRD GOLD linked National Cancer Registration and Analysis Service (NCRAS) cancer registration data contain records for each registrable tumour diagnosed or treated in England, of which the NCRAS has been notified.

Coverage

Spatial:
United Kingdom,England
Typical Age Range:
0-115
Follow Up:
1 - 10 Years
Pathway:
Cancer registration data are collected from a range of health care provider systems and other services.

Provenance

Origin

Sources:
EPR
Collection Situations:
  • Clinic
  • Secondary care - In-patients
  • Secondary care - Outpatients

Temporal

Accrual Periodicity:
Quarterly
Distribution Release Date:
27 March 2026
Start Date:
01 January 1990
End Date:
31 December 2023
Time Lag:
More than 6 months

Accessibility

Access

Access Service:
Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications
Access Request Cost:
Delivery Lead Time:
Variable
Jurisdictions:
GB-ENG
Data Controller:
Clinical Practice Research Datalink (CPRD)
Data Processor:
CPRD

Usage

Data Use Limitations:
  • General research use
  • No linkage
  • Research-specific restrictions
  • Research use only
Data Use Requirements:
  • Geographical restrictions
  • Institution-specific restrictions
  • Project-specific restrictions
  • Time limit on use
  • User-specific restriction
Resource Creators:
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)

Format and Standards

Vocabulary Encoding Schemes:
  • ICD10
  • ICDO3
Conforms To:
LOCAL
Languages:
en
Formats:
Tab delimited text

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of tumours in the tumour table
1270497
27 March 2026
Persons
Number of CPRD GOLD patients matched to a single cancer identifier
1122924
Count
27 March 2026