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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 555 days ago

Cancer Registration Data for CPRD Aurum

Dataset

Summary

DOI Name:
10.48329/3y5c-4p71

Documentation

Description:
The data contains a record for each registrable tumour diagnosed or treated in England, of which the NCRAS has been notified. Cancers are coded using the International Classification of Diseases for Oncology, revision 3, 2011. They are also back mapped to the tenth revision of the International Classification of Diseases version 10.

Coverage

Spatial:
United Kingdom,England
Typical Age Range:
0-115
Follow Up:
1 - 10 Years
Pathway:
Cancer registration data are collected from a range of health care provider systems and other services.

Provenance

Origin

Sources:
EPR
Collection Situations:
  • Clinic
  • Secondary care - In-patients
  • Secondary care - Outpatients

Temporal

Accrual Periodicity:
Quarterly
Distribution Release Date:
27 March 2026
Start Date:
01 January 1995
End Date:
01 December 2023
Time Lag:
2-6 months

Accessibility

Access

Access Service:
Access to CPRD data, including UK Primary Care Data, and linked data such as Hospital Episode Statistics, is subject to protocol approval via CPRD’s Research Data Governance (RDG) Process. Independent scientific and patient advice is provided by Expert Review Committees (ERCs) and the Central Advisory Committee (CAC): https://www.cprd.com/research-applications
Access Request Cost:
Delivery Lead Time:
Variable
Jurisdictions:
GB-ENG
Data Controller:
Clinical Practice Research Datalink (CPRD)
Data Processor:
CPRD

Usage

Data Use Limitations:
  • General research use
  • No linkage
  • Research-specific restrictions
  • Research use only
Data Use Requirements:
  • Geographical restrictions
  • Institution-specific restrictions
  • Project-specific restrictions
  • Time limit on use
  • User-specific restriction
Resource Creators:
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)

Format and Standards

Vocabulary Encoding Schemes:
  • ICD10
  • ICDO3
Conforms To:
LOCAL
Languages:
en
Formats:
Tab delimited text

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of tumours in the tumour table
4824620
27 March 2026
Persons
Number of distinct CPRD patients in the tumour table
5544866
Count
27 March 2026