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Version: 7.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago

Trusted Research Environments for CVD-COVID-UK / COVID-IMPACT

Dataset

Documentation

Description:
CVD-COVID-UK, co-ordinated by the British Heart Foundation (BHF) Data Science Centre, is one of the NIHR-BHF Cardiovascular Partnership’s National Flagship Projects. It aims to understand the relationship between COVID-19 and cardiovascular diseases through analyses of de-identified, pseudonymised, linked, nationally collated health datasets across the four nations of the UK. The consortium has over 400 members across more than 50 institutions including data custodians, data scientists and clinicians, all of whom have signed up to an agreed set of principles with an inclusive, open and transparent ethos. Approved researchers access data within secure trusted/secure research environments (TREs/SDEs) provided by NHS England (England), the National Safe Haven (Scotland), the SAIL Databank (Wales) and the Honest Broker Service (Northern Ireland). Linkable datasets include those from primary and secondary care, COVID lab tests and vaccinations, deaths, critical care, prescribing/dispensing, cardiovascular and stroke audits, maternity services and mental health. The centre has gained approval to broaden the scope of the programme to all COVID-related research (in NHS England’s SDE for England only). This is known as COVID-IMPACT and it will help to support research projects from the wider community, including for the National Core Studies. A dashboard of datasets available in each nation’s TRE can be found here: https://bhfdatasciencecentre.org/areas/cvd-covid-uk-covid-impact/ Note: - The demographic information/counts are approximate and rounded. Figures should not be used for anything other than a rough indication of size of the grouping. - Counts for people between 5-24 years have been approximated into these bins based on the age bins in the COALESCE study. https://www.hdruk.ac.uk/projects/coalesce/ - All count of people above the age of 85 years are included in the age bin 85-90 years.

Coverage

Spatial:
United Kingdom
Typical Age Range:
0-150
Follow Up:
Other
Pathway:
Primary care, secondary care, COVID testing and vaccinations, deaths, ITU/HDU admissions, prescribing/dispensing, cardiovascular audits (NICOR), stroke audits (SSNAP), maternity services, mental health.

Provenance

Origin

Purposes:
Study
Collection Situations:
  • Clinic
  • Primary care - Clinic
  • Secondary care - Accident and Emergency
  • Secondary care - Outpatients
  • Secondary care - In-patients
  • Community
  • Prescribing - Community pharmacy

Temporal

Accrual Periodicity:
Monthly
Start Date:
01 January 1990
Time Lag:
Variable

Accessibility

Access

Access Service:
Data is accessed within the respective TREs under the arrangements in place with the BHF Data Science Centre for CVD-COVID-UK / COVID-IMPACT
Delivery Lead Time:
1-2 months
Jurisdictions:
  • GB-ENG
  • GB-SCT
  • GB-WLS
Data Controller:
NHS England, Public Health Scotland/National Records Scotland, SAIL Databank
Data Processor:
NHS England, Public Health Scotland, SAIL Databank

Usage

Data Use Limitations:
Research-specific restrictions
Data Use Requirements:
  • Collaboration required
  • Institution-specific restrictions
  • Project-specific restrictions
  • Publication required
  • Time limit on use
  • User-specific restriction
Resource Creators:
NHS England, SAIL Databank, Scottish National Safe Haven

Format and Standards

Vocabulary Encoding Schemes:
  • OPCS4
  • READ
  • SNOMED CT
  • DM+D
  • ICD10
  • OTHER
  • NHS NATIONAL CODES
  • NHS WALES NATIONAL CODES
  • LOCAL
  • ICD9
  • NHS SCOTLAND NATIONAL CODES
  • ODS
Languages:
en
Formats:
SQL database table

Enrichment and Linkage

Derivations:
  • National Records of Scotland (NRS) - Deaths Data
  • Secondary Uses Services Payment By Results
  • Covid-19 Second Generation Surveillance System
  • GPES Data for Pandemic Planning and Research (COVID-19)
  • COVID-19 Vaccination Adverse Reaction
  • Hospital Episode Statistics Critical Care
  • Hospital Episode Statistics Admitted Patient Care
  • Hospital Episode Statistics Outpatients
  • MSDS (Maternity Services Data Set)
  • Covid-19 UK Non-hospital Antigen Testing Results
  • Medicines dispensed in Primary Care (NHSBSA data)
  • Hospital Episode Statistics Accident and Emergency
  • SICSAG Episodes (Scottish Intensive Care Audit Group)
  • SICSAG Daily (Scottish Intensive Care Audit Group)
  • Outpatient Appointments and Attendances - Scottish Morbidity Record (SMR00)
  • Prescribing Information System (PIS)
  • General Acute Inpatient and Day Case - Scottish Morbidity Record (SMR01)
  • Scotland Accident and Emergency
  • Welsh Dispensing Dataset (WDDS) - Legacy
  • SAIL Dementia e-Cohort (SDEC)
  • Pathology Data from WRRS (PATH) - Legacy
  • Welsh Ambulance Services NHS Trust (WAST) - Legacy
  • Emergency Department Dataset (EDDS)
  • Critical Care Dataset (CCDS)
  • Emergency Department Dataset Daily (EDDD)
  • Outpatient Referral (OPRD)
  • Covid Vaccination Dataset (CVVD)
  • Annual District Death Extract (ADDE)
  • Intensive Care National Audit and Research Centre (ICNC)
  • Patient Episode Dataset for Wales (PEDW)
  • Congenital Anomaly Register and Information Service (CARS)
  • Annual District Birth Extract (ADBE)
  • Annual District Death Daily (ADDD)
  • Care Home Dataset (CARE)
  • COVID-19 Consolidated Deaths (CDDS)
  • COVID-19 Shielded People List (CVSP)
  • COVID-19 Test Trace and Protect (CTTP) - Legacy
  • Intensive Care National Audit and Research Centre (ICCD) - Legacy - COVID only
  • COVID-19 Test Results (PATD)
  • Outpatient Database for Wales (OPDW)
  • Referral to Treatment Times (RTTD)
  • Maternity Indicators Dataset (MIDS)
  • Welsh Longitudinal General Practice Dataset (WLGP) - Welsh Primary Care
  • Welsh Demographic Service Dataset (WDSD)
  • National Community Child Health Database (NCCHD)
  • ONS 2021 Census (CENS)
  • Sentinel Stroke National Audit Programme Clinical Dataset
  • MSDS (Maternity Services Data Set)
  • Secondary Uses Services Payment By Results
  • Covid-19 Second Generation Surveillance System
  • Hospital Episode Statistics Outpatients
  • Covid-19 UK Non-hospital Antibody Testing Results
  • Hospital Episode Statistics Accident and Emergency
  • Covid-19 UK Non-hospital Antigen Testing Results
  • Medicines dispensed in Primary Care (NHSBSA data)
  • COVID-19 Vaccination Status
  • COVID-19 Vaccination Adverse Reaction
  • GPES Data for Pandemic Planning and Research (COVID-19)
  • Hospital Episode Statistics Admitted Patient Care
  • Civil Registration - Deaths
  • Hospital Episode Statistics Critical Care
  • COVID-19 SARI-Watch (formerly CHESS)
  • General Acute Inpatient and Day Case - Scottish Morbidity Record (SMR01)

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Multiple datasets in each nation"s TRE with a population size of up to 57M in England (NHSE), 5.5M in Scotland (Safe Haven) and 3.2M in Wales (SAIL). Some datasets measure events and will have a significantly larger number of records.
65000000
Count
01 January 1990