Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
The NNRD is a national resource holding real-world clinical data captured in the course of care on all admissions to NHS neonatal units in England, Wales, Scotland and the Isle of Man. Neonatal units submit data through their Electronic Patient Record system supplier. At present, there is information on around one million babies and 10 million days of care in the NNRD.
The NNRD is available to support audit, evaluations, bench-marking, quality improvement and clinical, epidemiological, health services and policy research to improve patient care and outcomes. Data in the NNRD comprise the Neonatal Data Set (ISB1595), an approved NHS Information Standard and include demographic details, daily records of interventions and treatments throughout the neonatal inpatient stay, information on diagnoses and outcomes, and follow-up health status at age two years.
The Neonatal Data Analysis Unit was founded to support the management and development of the National Neonatal Research Database (NNRD) established in 2007 by Professor Modi, and related research.
More information can be found at
https://www.imperial.ac.uk/neonatal-data-analysis-unit
Coverage
Spatial:
United Kingdom,England; United Kingdom,Wales; United Kingdom,Scotland; Isle of
Man
Typical Age Range:
0-1
Follow Up:
1 - 10 Years
Pathway:
Neonatal Unit stay
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
Secondary care - In-patients
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
01 April 2010
Start Date:
01 January 2007
Time Lag:
2-6 months
Accessibility
Access
Access Rights:
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB
Data Controller:
Professor Neena Modi, Imperial College London
Data Processor:
Professor Neena Modi, Imperial College London
Usage
Data Use Limitations:
No restriction
Data Use Requirements:
- Ethics approval required
- Project-specific restrictions
- User-specific restriction
Resource Creators:
We acknowledge the use of the UK National Neonatal Research Database (https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/), established and led by Professor Neena Modi and her research group at Imperial College London, the contribution of neonatal units that collectively form the UK Neonatal Collaborative ( https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/contributing-to-the-nnrd/), and their lead clinicians.
Format and Standards
Vocabulary Encoding Schemes:
NHS NATIONAL CODES
Languages:
en
Formats:
- SQL
- csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Data on over 1.2 million babies, with approximately 25,000 new infant records added quarterly.
1200000
Count
14 December 2021