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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago

Epilepsy 12 - National organisational audit and Trust profile

Dataset

Documentation

Description:
A dataset comprising a yearly survey of Trusts" paediatric epilepsy services. The dataset covers England and Wales and includes information on 10 areas of the provision and organisation of services: Workforce, Epilepsy clinic configuration, Tertiary provision, Investigations, Service contact, Young people and transition, Mental health provision, Neurodevelopmental support, Care planning, and the use of a Patient database/register. https://www.rcpch.ac.uk/sites/default/files/2018-07/epilepsy12_organisational_audit_dataset_may_2018_0.pdf

Coverage

Spatial:
United Kingdom,England; United Kingdom,Wales
Typical Age Range:
0-25

Provenance

Origin

Purposes:
Audit
Sources:
Electronic survey
Collection Situations:
  • Secondary care - Outpatients
  • Community

Temporal

Accrual Periodicity:
Other
Start Date:
01 January 1970
Time Lag:
Variable

Accessibility

Access

Access Request Cost:
An indicative cost will be provided to applicants upon application. Charges will be based on workload associated with the application and will be charged following sharing of the data. They will include a standard £350 + VAT admin fee to cover consultation and processing of the application, plus a £350 + VAT per day of analyst time– chargeable in half day increments. These costs are limited to RCPCH activitiy in the administation and preparation of requested data. HQIP will also charge according to their costing model.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-EAW
Data Controller:
Healthcare Quality Improvement Partnership jointly with NHS England
Data Processor:
Royal College of Paediatrics and Child Health

Usage

Data Use Limitations:
No restriction
Data Use Requirements:
  • Project-specific restrictions
  • Time limit on use
Resource Creators:
Data has been provided by the Healthcare Quality Improvement Partnership from the Epilepsy12 Audit Programme

Format and Standards

Vocabulary Encoding Schemes:
OTHER
Languages:
en
Formats:
.xlsx

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of Trusts and Health Boards who submitted data for the 2020 report.
136
Count
01 December 2020