Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Description:
A prospective national clinical audit dataset which aims to include information on the investigation, diagnosis, treatment, care planning and outcomes of all children and young people with a new onset of epilepsy.
Details are recorded about the first assessment children and young people receive following a suspected seizure. Their care is then followed for 12 months. The audit uses 12 key measures drawn from clinical guidelines which include: involvement of paediatricians and nurses with experise in epilepsy, appropriate referrals to tertiary and surgical services,
content of the first assessment, appropriate seizure classification, appropriate diagnostic investigations, use of epilepsy medications, and evidence of comprehensive care planning.
https://www.rcpch.ac.uk/sites/default/files/2019-06/epilepsy12_r3_patient_reg_and_clin_audit_dataset_june_19.pdf
Coverage
Spatial:
United Kingdom,England; United Kingdom,Wales
Typical Age Range:
0-25
Follow Up:
6 - 12 Months
Provenance
Origin
Purposes:
Audit
Collection Situations:
- Secondary care - Outpatients
- Community
Temporal
Accrual Periodicity:
Daily
Start Date:
01 January 2009
Time Lag:
Variable
Accessibility
Access
Access Request Cost:
An indicative cost will be provided to applicants upon application. Charges will
be based on workload associated with the application and will be charged
following sharing of the data. They will include a standard £350 + VAT admin fee
to cover consultation and processing of the application, plus a £350 + VAT per
day of analyst time– chargeable in half day increments. These costs are limited
to RCPCH activitiy in the administation and preparation of requested data. HQIP
will also charge according to their costing model.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-EAW
Data Controller:
Healthcare Quality Improvement Partnership jointly with NHS England
Data Processor:
Royal College of Paediatrics and Child Health
Usage
Data Use Limitations:
No restriction
Data Use Requirements:
- Project-specific restrictions
- Time limit on use
Resource Creators:
Data has been provided by the Healthcare Quality Improvement Partnership from the Epilepsy12 Audit Programme
Format and Standards
Vocabulary Encoding Schemes:
OTHER
Languages:
en
Formats:
.xlsx
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of children registered to the audit for publication in 2020, or which 1118 had been diagnosed with epilepsy.
3318
Count
01 December 2020