Organisational survey data collection of diabetes-related technologies in paediatric diabetes units (PDUs), based on the situation on 31 March 2018. contains results from all one hundred and seventy-three  PDUs in England and Wales.

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Organisational survey data collection covering the use of diabetes-related technologies in paediatric diabetes units (PDUs), based on the situation at each Paediatric Diabetes Unit on 31 March 2018. contains results from all one hundred and seventy-three  PDUs in England and Wales.

percentage of paediatric diabetes units who completed the survey

HDR UK

Data has been provided by the Healthcare Quality Improvement Partnership from the National Paediatric Diabetes Audit Programme

PZ number

Data fields- NPDA 2018 diabetes-related technologies audit

NPDA 20218  diabetes-related technologies audit

What is the name of your NHS Trust/LHB? (needed to validate PZ number)

NHS Trust/Health Board name

On 31st March 2018, how many patients with Type 1 diabetes were there in your paediatric diabetes service?

Number of Type 1 diabetes patients on 31st March 2018

On 31st March 2018, how many patients with other types of diabetes were there within your paediatric diabetes service?

Number of patients with other types of diabetes on 31st March 2018

At diagnosis (within the first month), which best describes your unit’s practice with regards to how newly diagnosed children and young people with Type 1 diabetes are managed?

How newly diagnosed patients with Type 1 diabetes are managed

Within the previous year (1st April 2017- 31st March 2018), how many children and young people with Type 1 diabetes started on pumps within a month of diagnosis?

Within previous year, number of children with Type 1 diabetes that started on pumps within a month of diagnosis

At diagnosis (within the first month), what structured education programme do you deliver for patients with Type 1 diabetes locally?

Structued education programme delivered

Is the structured education programme delivered at diagnosis defined in your response to the previous question quality assured?

Is the structured education programme quality assured?

On 31st March 2018, how many of your Type 1 patients (in total: new and follow up) were you managing on insulin pump therapy?

Number of Type 1 diabetes patients being managed on insulin pump therapy

Of the total number of Type 1 diabetes patients managed on insulin pump therapy, please enter the number of patients who had their pump funded by each method below, or enter ‘DK’ if you don’t know:

Insulin pump therapy funding

Do you have a dedicated insulin pump therapy clinic (for patients on pump only)?

Dedicated insulin pump therapy clinic

When starting a patient on an insulin pump do you require competency criteria to be met to determine if pump therapy is appropriate for newly diagnosed or established patients with Type 1 diabetes?

Competency criteria required for pump therapy

What competency criteria do you require to determine if pump therapy is appropriate?

How long do your established patients typically wait for pump initiation following approval?

Length of wait for pump initiation following approval

Within the past two audit years (1st April 2016 – 31st March 2018) has your service had to suspend insulin pump starts?

Suspension of insulin pump starts

If your service suspended insulin pump starts, what was the reason for this?

Reason for suspension of insulin pump starts

Are insulin pumps in your service which are beyond their (normally 4 years) warranty replaced immediately (if still clinically appropriate)?

Replacing of insulin pumps beyond warranty

Is a company representative present at your insulin pump therapy starts?

Company representative presence at insulin pump therapy starts

If a company representative is always or sometimes present at your insulin pump therapy starts, is a healthcare professional also always present?

Healthcare professional presence at insulin pump therapy starts

Which of the following members of staff provide ongoing training for patients/parents/carers on insulin pump therapy use?

Staff providing training for insulin pump therapy

Does your unit have a written policy/guideline for the management of children and young people with diabetes on insulin pump therapy who are admitted to hospital?

Policy for management of patients on insulin pump therapy admitted to hospital

Does your unit have a written policy/guideline for the management of children and young people with diabetes on insulin pump therapy who are undergoing surgery

Policy for management of patients on insulin pump therapy undergoing surgery

Is there provision for children and young people with diabetes on pumps or their parents to continue to self-manage (when clinically appropriate) after admission to hospital?

Provision for self-management after admission to hospital

Do you have a written policy/guideline for insulin pump therapy withdrawal when it is ineffective/unsafe?

Policy for insulin pump therapy withdrawal when it is ineffective

Do your patients on insulin pump therapy have access to 24-hour technical (non-clinical) support?

Insulin pump therapy patient access to technical support

Who provides this technical support for your patients on insulin pump therapy?

Who provided technical support

As of 31st March 2018, enter the number of consultants within your service who have ever attended a recognised insulin pump therapy training session

Consultants trained in insulin pump therapy

As of 31st March 2018, enter the number of PDSNs within your service who have ever attended a recognised insulin pump therapy training session

PDSNs trained in insulin pump therapy

As of on 31st March 2018, enter the number of dietitians within your service who have ever attended a recognised insulin pump therapy training session

Dietitians trained in insulin pump therapy

As of on 31st March 2018, enter the number of psychologists within your service who have ever attended a recognised insulin pump training session

Psychologists trained in insulin pump therapy

As of on 31st March 2018, enter the number of diabetes educators within your service who have ever attended a recognised insulin pump training session

Diabetes educators trained in insulin pump therapy

On 31st March 2018, how many of your patients all types of diabetes were using CGM (not including flash glucose monitoring/DIY closed loop systems)?

Number of patients of all types of diabetes using CGM

On 31st March 2018 how many of your patients using CGM (not including flash glucose monitoring/DIY closed loop systems) fell into the following categories.  Please enter the number if known and the total should add up to the total number of patients provided who are using CGM.

Types of patients using CGM

On 31st March 2018 how many of your patients using CGM (not including flash glucose monitoring/DIY closed loop systems) delivered insulin by the following methods? Please enter the number if known and the total should add up to the total number of patients provided who are using CGM.

Number of patients using CGM delivered insulin

Of your patients using CGM, please enter the number of patients who had their CGM device funded by each method below

Funding of CGM devices

On 31st March 2018, how many of your patients were using a DIY closed loop artificial pancreas to manage their diabetes (i.e. an unapproved system used outside of a clinical trial)?

Number of patients using a DIY closed loop artificial pancreas

On 31st March 2018, how many of your patients with diabetes were using a Freestyle Libre?

Number of patients using a Freestyle Libre

Of those using a Freestyle Libre, please enter the number of patients who had their Freestyle Libre funded by each method below

National Paediatric Diabetes Audit - survey of diabetes-related technologies

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