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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago

National Paediatric Diabetes Audit - Parent and Patient Experience measures

Dataset

Documentation

Description:
Patient and parent captured experience data on paediatric diabetes unit activity captured February to July 2019 throughout England and Wales. The dataset includes questions about both the health checks received and diabetes outcomes achieved. No personal identifiable information is collected, but the identity of the unit where the patient was treated is included in the dataset.

Coverage

Spatial:
United Kingdom,England; United Kingdom,Wales
Typical Age Range:
4-19
Follow Up:
Unknown
Pathway:
The dataset is representative of paediatric diabetes care, where participants were recruited from. Very few children or young people with diabetes would be managed outside of this setting.

Provenance

Origin

Purposes:
Audit
Sources:
Electronic survey
Collection Situations:
  • Clinic
  • Home

Temporal

Accrual Periodicity:
Static
Distribution Release Date:
12 November 2020
Start Date:
01 February 2019
End Date:
01 August 2019
Time Lag:
More than 6 months

Accessibility

Access

Delivery Lead Time:
Not applicable
Jurisdictions:
GB-EAW
Data Controller:
Healthcare Quality Improvement Partnership jointly with NHS England
Data Processor:
Royal College of Paediarics and Child Health

Usage

Data Use Limitations:
No restriction
Data Use Requirements:
Project-specific restrictions
Resource Creators:
Data has been provided by the Healthcare Quality Improvement Partnership from the National Paediatric Diabetes Audit Programme

Format and Standards

Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
  • CCSV
  • XLXS
  • STATA
  • SPSS

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of surveys returned
14000
Count
31 July 2019