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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 226 days ago

UK ME/CFS Biobank

Dataset

Documentation

Description:
Participants: Over 650 participants are included in the study, including ME/CFS participants diagnosed by a physician and compliant with CDC "94 (Fukuda) and Canadian Consensus Criteria (CCC), with case definition compliance available for four other commonly-used criteria. Healthy and MS matched controls are also available. - Mild and Moderate ME/CFS - Severe (Home-Bound) ME/CFS - Multiple Sclerosis - Healthy Controls Samples Available: Over 32,000 aliquots available. - Whole Blood - Serum - Plasma - RBCs - PBMCs (Sodium Heparin and K2 EDTA) - Blood for RNA Extraction (PaxGENE) Associated Data Available: - Baseline Standard Laboratory Tests to exclude comorbidity causes of fatigue - In-person clinical assessment data - Detailed Symptoms Assessments - Demographic information - Standardised instruments of Fatigue Severity and Functional Impairment

Coverage

Spatial:
United Kingdom,England
Typical Age Range:
15-150

Provenance

Temporal

Distribution Release Date:
19 February 2019
Start Date:
01 January 2012
Time Lag:
Variable

Accessibility

Access

Access Rights:
Please contact the publisher using Contact Point details provided
Access Request Cost:
Not specified
Delivery Lead Time:
Not applicable
Data Controller:
London School of Hygiene & Tropical Medicine

Usage

Resource Creators:
In Progress

Format and Standards

Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
In Progress