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Version: 0.0.2 | Published: 26 Jul 2023 | Updated: 666 days ago

Trusted Research Environments for CVD-COVID-UK in England, Scotland and Wales

Dataset

Documentation

Description:
CVD-COVID-UK, led by Professor Cathie Sudlow, Director of the British Heart Foundation (BHF) Data Science Centre, is one of the National Flagship Projects approved by the NIHR-BHF Cardiovascular Partnership. It aims to understand the relationship between COVID-19 and cardiovascular diseases such as heart attack, heart failure, stroke, and blood clots in the lungs through analyses of de-identified, pseudonymised, linked, nationally collated healthcare datasets across the four nations of the UK. CVD-COVID-UK is a collaboration of over 130 members across 40 institutions including data custodians, data scientists with methodological and analytical expertise and clinicians, all of whom have signed up to an agreed set of principles with an inclusive, open and transparent ethos. Approved researchers will access datasets within secure trusted research environments (TREs) provided by NHS Digital in England, the National Data Safe Haven in Scotland, the SAIL Databank in Wales and the Honest Broker Service in Northern Ireland. Datasets are available across primary and secondary care, COVID testing, deaths, ITU/HDU admissions, prescribing/dispensing, cardiovascular audits (NICOR), stroke audits (SSNAP) and national vascular registry. A list of datasets currently available in each nation’s TRE can be found on associated BHF Data Science Centre webpages (URL as below).
Is Part Of:
CVD-COVID-UK

Coverage

Typical Age Range:
0-150
Follow Up:
OTHER
Physical Sample Availability:
NOT AVAILABLE
Pathway:
Primary care, secondary care, COVID testing, deaths, ITU/HDU admissions, prescribing/dispensing, cardiovascular audits (NICOR), stroke audits (SSNAP), national vascular registry

Provenance

Origin

Purposes:
STUDY
Sources:
  • EPR
  • LIMS
Collection Situations:
  • CLINIC
  • PRIMARY CARE
  • ACCIDENT AND EMERGENCY
  • OUTPATIENTS
  • IN-PATIENTS
  • COMMUNITY
  • PHARMACY

Temporal

Accrual Periodicity:
MONTHLY
Start Date:
01 January 1990
Time Lag:
VARIABLE

Accessibility

Access

Access Rights:
In progress - contact bhfdsc@hdruk.ac.uk
Access Service:
Data is accessed within the respective TREs under the arrangements in place with the BHF Data Science Centre for CVD-COVID-UK
Delivery Lead Time:
1-2 WEEKS
Jurisdictions:
  • GB-ENG
  • GB-SCT
  • GB-WLS

Usage

Data Use Limitations:
RESEARCH SPECIFIC RESTRICTIONS
Data Use Requirements:
  • COLLABORATION REQUIRED
  • INSTITUTION SPECIFIC RESTRICTIONS
  • PROJECT SPECIFIC RESTRICTIONS
  • PUBLICATION REQUIRED
  • TIME LIMIT ON USE
  • USER SPECIFIC RESTRICTION
Resource Creators:
NHS Digital SAIL Databank Scottish National Data Safe Haven

Format and Standards

Vocabulary Encoding Schemes:
  • OPCS4
  • READ
  • SNOMED CT
  • DM+D
  • ICD10
  • OTHER
Languages:
en