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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago

Genomics England - Research Community Provided Data

Dataset

Documentation

Description:
Data provided by or on behalf of the wider research community. This can include data resources from both GeCIP and Discovery Forum members. Researchers can reach out to Genomics England via the Service Desk for more information or if they wish to share their data with the wider community.

Coverage

Typical Age Range:
0-151

Provenance

Temporal

Accrual Periodicity:
Quarterly
Distribution Release Date:
30 March 2023
Start Date:
05 November 2021
Time Lag:
Other

Accessibility

Access

Access Service:
More information about the Genomics England Research Environment can be found here: https://www.genomicsengland.co.uk/about-genomics-england/research-environment/ https://research-help.genomicsengland.co.uk/display/GERE/1.+The+Genomics+England+Research+Environment Genomics England 100k participants have consented to longitudinal lifetime followup and recontact safely through our clinical network. BRST (Bioinformatics Research Services) are a team of bioinformatics who know the dataset inside out and provide consultancy projects on a case by case basis. Our network of clinical and medical experts can be made available on case by case basis. Researchers have the opportunity to work with our and access the GeCIP network who are a community of world-leading experts in specific cancers and rare diseases.
Access Request Cost:
Fees will be dependent on the type of access that is necessary. Raw data is not eligible for export. Summary-level data may be exported provided that it is approved through the Genomics England Airlock Process
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GBN
Data Controller:
GENOMICS ENGLAND
Data Processor:
GENOMICS ENGLAND

Usage

Resource Creators:
Genomics England

Format and Standards

Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
Multiple Formats Available

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Cancer Tumour - Number of genomes
-1
Count
01 January 1970
Persons
Rare Disease Participants
-1
Count
01 January 1970
Persons
Cancer Germline - Number of genomes
-1
Count
01 January 1970
Persons
Rare Disease - Number of genomes
-1
Count
01 January 1970
Persons
Cancer Participants
-1
Count
01 January 1970