Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
Cancer Network Information System Cymru (CaNISC) includes multidisciplinary team diagnosis, proposed treatments, and a system-generated summary of the patient’s cancer record.
The core system used across Wales has been CaNISC. This system provided the cancer patient record of treatment, the patient administration system for Velindre Cancer Centre, and was the primary source of cancer data for waiting times, clinical audit, and cancer registration.
Velindre Cancer Centre successfully migrated from CaNISC onto the new Cancer Informatics System (CIS) in November 2022.
Why is CaNISC being replaced?
Whilst CaNISC allowed multiple organisations to record the diagnosis, treatment and follow-up care information for a patient, it could only be accessed by approximately 2000 authorised health care professionals. Patients receive care in many settings outside of the cancer centres and their cancer care clinical information was often not available to other health professionals treating patients for other health related issues in other care settings.
CaNISC approached the end of its viable service as it could no longer be updated to keep pace with changing clinical practices and processes. The 2018 Cancer Delivery Plan for Wales included an action to explore the replacement of CaNISC, resulting in a business case being submitted to the Welsh Government to develop a new Cancer Information System for Wales.
Welsh Government agreed a £6.5 million investment from the Digital Priorities Investment Fund in 2019 spanning three financial years, working with Digital Health and Care Wales (DHCW), health boards and trusts to deliver the Cancer Informatics Programme.
Coverage
Spatial:
United Kingdom,Wales
Typical Age Range:
0-120
Follow Up:
Unknown
Pathway:
All pathways pertaining to cancer
Provenance
Origin
Collection Situations:
- Primary care - Clinic
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
Temporal
Accrual Periodicity:
Weekly
Start Date:
01 January 2016
End Date:
10 November 2024
Time Lag:
2-6 months
Accessibility
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP).
Following approval through safeguard processes, access to project-specific data
within the secure environment is permitted using two-factor authentication.
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-GB
Data Controller:
NHS, SAIL Databank
Data Processor:
SAIL Databank
Usage
Data Use Limitations:
Research-specific restrictions
Data Use Requirements:
Project-specific restrictions
Resource Creators:
Digital Health and Care Wales
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
SQL database table
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Findings
3000000
Count
01 January 2021