Version: 2.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
This dataset covers 86% of the population of Wales and 83% of GP practices in Wales. It is linkable with anonymised fields for individuals and GPs to other datasets, including bespoke project specific cohorts. Each GP practice uses a clinical information system to maintain an electronic health record for each of their patients; capturing the signs, symptoms, test results, diagnoses, prescribed treatment, referrals for specialist treatment and social aspects relating to the patients home environment.
The majority of the data is entered by the clinician during the patient consultation. Test results are electronically transferred from secondary care systems.
There are no standard rules for recording data within primary care clinical information systems. Therefore, each individual clinician can record information in their own way. The majority use Read Code Terminology, however, sometimes this is applied behind the scenes by the clinical system and sometimes local codes are used. Read codes are not as precise as ICD 10 or OPCS codes.
Coding standards have been agreed on for conditions monitored by the QOF (Quality Outcomes Framework) returns. Since the implementation of QOF these conditions have been coded in a more consistent way.
Time coverage varies between each practice.
A link to the number of GP practices per local health board in this dataset can be found in the Associated media.
Coverage
Spatial:
United Kingdom,Wales
Typical Age Range:
0-150
Follow Up:
1 - 10 Years
Pathway:
Primary Care
Provenance
Origin
Purposes:
Disease registry
Sources:
EPR
Collection Situations:
Secondary care - In-patients
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
06 May 2021
Start Date:
01 January 2000
End Date:
30 June 2021
Time Lag:
Less than 1 week
Accessibility
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP).
Following approval through safeguard processes, access to project-specific data
within the secure environment is permitted using two-factor authentication.
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB
Data Controller:
SAIL Databank
Data Processor:
SAIL Databank
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creators:
Welsh General Practices that have signed up to SAIL
Format and Standards
Vocabulary Encoding Schemes:
READ
Languages:
en
Formats:
SQL database table
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
3500000
Count
13 May 2021