Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Associated Media:
Description:
A register of children diagnosed with type 1 diabetes in Wales, collected from Paediatric diabetes clinics in Wales. Maintained by the Brecon Group. Two capture-recapture studies have been done showing >97% completeness for type 1 diabetes diagnoses in Wales. Data has been collected since 1995 and is complete since then, but some people diagnosed earlier are also included.
Coverage
Spatial:
United Kingdom,Wales
Typical Age Range:
0-19
Follow Up:
1 - 10 Years
Pathway:
Secondary care
Provenance
Origin
Sources:
EPR
Collection Situations:
Clinic
Temporal
Accrual Periodicity:
Annual
Start Date:
06 June 1979
End Date:
19 April 2021
Time Lag:
1-2 months
Accessibility
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP).
Following approval through safeguard processes, access to project-specific data
within the secure environment is permitted using two-factor authentication.
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Delivery Lead Time:
Not applicable
Jurisdictions:
GB
Data Controller:
Brecon Group
Data Processor:
SAIL Databank
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creators:
["Brecon Group"]
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
SQL database table
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Approx 70-80% coverage of Welsh population through GP registrations.
3000000
Count
01 September 2021