Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 226 days ago
Documentation
Associated Media:
Description:
NHS Digital’s TRE service for England provides approved researchers with access to essential linked, de-identified health data to quickly answer COVID-19 related research questions. The TRE service provides researchers with support on data access requests, provision of data using the secure data platform the Data Processing Service (DPS) and help with analysis work. Approved research projects will help to guide national decision making and recommend potential interventions to reduce the severity of COVID-19 outcomes.
NHSD are delivering the TRE service in partnership with HDRUK. The shared objective is to provide rapid, safe and trustworthy access to data in a transparent way that accelerates the pace of quality research.
Coverage
Spatial:
United Kingdom,England
Typical Age Range:
0-150
Follow Up:
> 10 Years
Pathway:
Enumerating the impact of COVID-19 on cancer pathways: a robust evaluation of
the NHS Digital Trusted Research Environment (TRE). We will delineate the
precise impact of the COVID 19 pandemic on cancer systems and cancer patients.
This requires access to both historical data (pre 2020) and near real-time data
on patients referred with (i) a suspicion of cancer and (ii) those diagnosed
with and/or managed for cancer. Our emphasis is on data on cancer referral,
cancer diagnosis, cancer treatment and cancer outcomes, examining the impact of
age, ethnicity, deprivation, comorbidity and concurrent medication. We will
examine the effects of COVID-19 on: • Cancer referral (including those which
lead to a cancer diagnosis and those where cancer is excluded) • Cancer
diagnosis (including date, tumour site, stage, grade, morphology and key
molecular/genetic/ phenotype) • Cancer treatment (including surgical procedures,
chemotherapy/targeted therapy and radiotherapy) • Clinical trial activity
including recruitment to and active treatment within trials • Outcomes
(including both hospital admission, survival, mortality and cause of death) •
COVID status (including COVID testing (Pillar 1&2) and results, acute
hospitalisation and related direct COVID deaths in cancer patients). We will
also examine the interaction and impact of other factors including • Age •
Ethnicity • Social deprivation (IMD quintile) • Comorbidity (based on both
hospital and primary care data) • Concurrent medication (including both hospital
and primary care data) • Geography including rurality and health care region •
Rates of COVID infection, hospitalisation and death in discrete health care
regions We will compare activity from 2019 and 2020 but to include patients
diagnosed with cancer at any time before then.
Provenance
Origin
Sources:
EPR
Collection Situations:
- Clinic
- Primary care - Clinic
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
- Services
- Community
- Prescribing - Community pharmacy
Temporal
Accrual Periodicity:
Continuous
Distribution Release Date:
01 March 2021
Start Date:
01 January 2011
Time Lag:
1-2 months
Accessibility
Access
Access Service:
Organisations and individuals wanting to use certain kinds of data need to show
they meet strict data governance standards by completing the NHS Digital DARS
application process. The DARS team makes sure we only supply sensitive patient
level data to organisations that look after it according to Information
Governance (IG) requirements, and use it to improve health and care services.
Access Request Cost:
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
University of Leeds Leeds Teaching Hospital Trust
Data Processor:
University of Leeds Leeds Teaching Hospital Trust
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Collaboration required
- Institution-specific restrictions
- Project-specific restrictions
- User-specific restriction
Resource Creators:
DATA-CAN The HDR UK Hub for Cancer
Format and Standards
Vocabulary Encoding Schemes:
- OPCS4
- SNOMED CT
- DM+D
- NHS NATIONAL CODES
- ODS
- ICD10
Languages:
en
Formats:
- text/json
- text/xml
- text/csv