Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
https://exceed.org.uk/
EXCEED has been described in a cohort profile paper accessible here: https://academic.oup.com/ije/article/48/3/678/5485771
EXCEED is a longitudinal population-based cohort which facilitates investigation of genetic, environmental and lifestyle-related determinants of a broad range of diseases and of multiple morbidity through data collected at baseline and via electronic healthcare record linkage. Recruitment has taken place in Leicester, Leicestershire and Rutland since 2013 and is ongoing, with >10,650 participants aged 30-69 to date. The population of Leicester is diverse and additional recruitment from the local South Asian community is ongoing. Participants provided a DNA sample, have consented to follow-up for up to 25 years through electronic health records and additional bespoke data collection is planned. Data available includes baseline demographics, anthropometry, spirometry, lifestyle factors (smoking and alcohol use) and longitudinal health information from primary care records, with additional linkage to other EHR datasets planned. Patients have consented to be contacted for recall-by-genotype and recall-by-phenotype sub-studies. Genome-wide genotype data are available via EGA for 5218 individuals.
Coverage
Spatial:
United Kingdom,England,East Midlands; United Kingdom,England,West Midlands
Typical Age Range:
18-70
Follow Up:
> 10 Years
Pathway:
The population includes only covers adults (over 18) who live within certain
areas: Midlands, UK. Data is survey data, clinic assessments, and linkable to
primary and secondary care.
Provenance
Origin
Purposes:
Study
Collection Situations:
- Clinic
- Primary care - Clinic
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
- Community
- Home
Temporal
Accrual Periodicity:
Annual
Distribution Release Date:
16 December 2019
Start Date:
01 January 1950
End Date:
03 August 2018
Time Lag:
Not applicable
Accessibility
Access
Access Service:
SAIL Databank - https://saildatabank.com/
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements
Delivery Lead Time:
Not applicable
Jurisdictions:
GB
Data Controller:
BREATHE
Data Processor:
BREATHE
Usage
Data Use Limitations:
Research-specific restrictions
Data Use Requirements:
Project-specific restrictions
Resource Creators:
EXCEED
Format and Standards
Vocabulary Encoding Schemes:
READ
Languages:
en
Formats:
CSV