Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Associated Media:
Description:
Improving cancer outcomes are an explicit priority for the WH&H CA. The high-level outcomes of one-year survival, emergency presentation, stage at diagnosis, and patient experience have been endorsed by the alliance board and the system leadership of the Health and Care Partnership (ICS). The aims are to use data on outcomes to drive policy, service development and improvement and the use of granular data by tumour site to understand the impact of clinical decisions on patient outcomes and actively engage with clinicians through the Optimum Pathway Groups.
The Yorkshire and Humber LHCRE has developed and funded a secure, cloud-based environment to support the analysis of clinical data from across the region. The LHCRE has prioritised cancer as one of its two key domains with a specific focus on population health analyses that can support the development and delivery of improved pathway of care. This capability will be used to develop a real time analysis of cancer data and its outcomes.
The work will be carried out in partnership with the NHS to ensure that the products of this capability links directly with the ability to influence decisions on resources used in WY&H CA to improve cancer outcomes.
The inputs required for this are the real-time (?7 days) data on cancer waiting times data (CWT), cancer outcomes and services dataset (COSD) and the Systemic Anticancer Treatment dataset (SACT) submissions and Radio Therapy (RT) Care by provider. These datasets are already captured by hospitals across the region and hence no new data collection is proposed at this time. These datasets will continue to be submitted to support national analyses supporting audit and registration.
The outputs will be developed as a suite of dashboards which will allow each provider and the alliance as a whole to monitor trends and changes in CWT, emergency presentation and stage at diagnosis by cancer type, and a rolling 3 and 12-month survival analysis.
The data will be handled within the Google Cloud Platform (GCP) in the following containers that are located in data centres in London, UK:
Coverage
Spatial:
United Kingdom,England,Yorkshire and The Humber
Typical Age Range:
0-150
Follow Up:
> 10 Years
Pathway:
Cancer Clinical Pathway: including cancer waiting times data (CWT), cancer
outcomes and services dataset (COSD) and the Systemic Anticancer Treatment
dataset (SACT) submissions and Radio Therapy (RT) Care by provider.
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
- Clinic
- Secondary care - Outpatients
- Secondary care - In-patients
- Services
- Community
Temporal
Accrual Periodicity:
Continuous
Distribution Release Date:
03 January 2021
Start Date:
01 January 2019
Time Lag:
2-4 weeks
Accessibility
Access
Access Service:
The outputs will be developed as a suite of dashboards which will allow each
provider and the alliance as a whole to monitor trends and changes in CWT,
emergency presentation and stage at diagnosis by cancer type, and a rolling 3
and 12-month survival analysis. The data will be handled within the Google Cloud
Platform (GCP) in the following containers that are located in data centres in
London, UK. For access see www.yhcr.org
Access Request Cost:
Calculated on individual basis
Delivery Lead Time:
Not applicable
Data Controller:
West Yorkshire Cancer Alliance
Data Processor:
Yorkshire and Humber Care Record via Humber Teaching NHS FT
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Collaboration required
- Geographical restrictions
- User-specific restriction
Resource Creators:
West Yorkshire and Harrogate Cancer Alliance
DATA-CAN
YHCR
Format and Standards
Vocabulary Encoding Schemes:
- OPCS4
- SNOMED CT
- ICD10
Languages:
en
Formats:
- text/csv
- text/xml