Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
This data set has been designed to support the aim to improve NHS cancer patient outcomes by sharing real-time data about UK cancer services during the COVID-19 pandemic and afterwards. This will be achieved by creating a network of UK-wide hospitals large and representative enough to allow national and local data analysis, enabling insights that are not possible from current national datasets. All hospitals share an agreed minimum dataset at minimum quality on a weekly basis (Level 1) with the option to share deeper datasets if that fits their digital maturity, patient choice, information governance and organisational priorities (Level 2 and 3). All data will be kept and shared under appropriate and agreed information governance and legal contracts, and via Trusted Research Environment(s).
Coverage
Spatial:
United Kingdom
Typical Age Range:
0-150
Follow Up:
6 - 12 Months
Pathway:
Secondary care (plans to include primary and community care)
Provenance
Origin
Collection Situations:
- Primary care - Clinic
- Secondary care - Outpatients
- Secondary care - In-patients
- Community
- Home
Temporal
Accrual Periodicity:
Continuous
Start Date:
06 January 2020
Time Lag:
Less than 1 week
Accessibility
Access
Access Rights:
Access Service:
The Yorkshire and Humber Care Record (YHCR) solution – The Data Ark (Which
fulfils the requirements of a Trusted Research Environment) has been developed
by the YH health and social care partners with the intention of creating a joint
electronic Population Health Management (PHM) Solution. DATA-CAN has a
collaboration arrangement with the YHCR to use this technology for RTDN.
Access Request Cost:
Data access for NHS management and members of the network is free. DATA- CAN
will deliver and share basic analyses and dashboards. Additional costs of
further analysis and research will need external funding
Delivery Lead Time:
Not applicable
Jurisdictions:
- GB-ENG
- GB-EAW
- GB-NIR
- GB-SCT
- GB-WLS
- GB-GBN
Data Controller:
UCL Partners
Data Processor:
DATA-CAN
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Ethics approval required
- Geographical restrictions
- Institution-specific restrictions
- User-specific restriction
Resource Creators:
DATA-CAN
Format and Standards
Vocabulary Encoding Schemes:
- OPCS4
- SNOMED CT
- NHS NATIONAL CODES
- NHS SCOTLAND NATIONAL CODES
- NHS WALES NATIONAL CODES
- ICD10
Languages:
en
Formats:
- text/csv
- text/xml
- application/vnd.ms-excel
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
People with a diagnosis of cancer, and people with presentation of symptoms relating to cancer (chief complaint in SNOMED CT)
10000
count
01 April 2021