Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago
Documentation
Associated Media:
Description:
This uses the data within PPM+, the EHR for the Leeds Cancer Centre and Leeds Teaching Hospitals. It includes all patients diagnosed with cancer since 1990, all
chemotherapy since 1993, all radiotherapy since 1994. It integrates all sources of electronic data including in-patient admissions, out-patient events, all radiology
reports, all pathology reports, all blood tests, all microbiology, all letters/annotations generated digitally. It collects detailed diagnosis information on patients
referred with a suspicion of/diagnosis of cancer and generates the outputs which support national cancer registration, cancer outcomes services dataset, SACT
(chemo), RTDS (radiotherapy), cancer waiting times. It contains data on >300,000 cancer patients which reflect Leeds activity as a local hospital for the population
of 850,000, the regional cancer centre for 2.7M and the specialist referral centre for rare cancers (paediatric, soft-tissue sarcoma) for the 5.4M from Yorkshire &
Humber. This dataset has been used to examine diagnosis to death care of cohorts of cancer patients with lung, breast, colorectal, ovary, bladder cancer including
all recurrence events and hence can describe time to progression, progression-free and overall survival from first diagnosis, 1st recurrence, 2nd recurrence.
Coverage
Spatial:
United Kingdom,England,Yorkshire and The Humber,Leeds
Typical Age Range:
0-150
Follow Up:
> 10 Years
Pathway:
Cancer diagnosis and treatment pathway
Provenance
Origin
Purposes:
Study
Sources:
EPR
Collection Situations:
- Clinic
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
- Prescribing - Community pharmacy
Temporal
Accrual Periodicity:
Continuous
Distribution Release Date:
31 January 2021
Start Date:
01 January 1990
Time Lag:
Not applicable
Accessibility
Access
Access Service:
Data Access Request Committee
Access Request Cost:
Calculated on individual basis
Delivery Lead Time:
Not applicable
Data Controller:
Leeds Teaching Hospitals Trust (LTHT)
Data Processor:
Leeds Teaching Hospitals Trust (LTHT)
Usage
Data Use Limitations:
General research use
Data Use Requirements:
- Collaboration required
- Ethics approval required
Resource Creators:
Leeds Teaching Hospitals Trust (LTHT) and IQVIA
Format and Standards
Vocabulary Encoding Schemes:
- OPCS4
- DM+D
- ODS
- ICD10
Languages:
en
Formats:
- text/csv
- text/xml