Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Description:
Many people with chronic obstructive pulmonary disease (COPD) remain very breathless and limited. In some patients, with the appropriate pattern of emphysema, an operation called lung volume reduction surgery is effective at removing the worst affected area of lung. New techniques have been developed where emphysema can be treated using a fibre-optic camera called a bronchoscope. Trials have shown that using a bronchoscope to place endobronchial valves into the airways can be very effective in carefully selected patients and the technique is now being adopted in hospitals across the UK.
This study will collect data from people undergoing these procedures at hospitals across the UK to evaluate how well they work in practice and what factors at baseline influence response.
Baseline, three month and 12 month follow up data will be collected. This will include lung function data, measures of exercise capacity, questionnaires about health status and CT scan results.
Questions addressed will include:
(1) What lung function improvement is seen in clinical practice?
(2) What factors determine who is most likely to respond?
(3) How safe are the procedures and what is the rate of complications?
(4) What proportion of people undergoing bronchoscopic procedures require repeat procedures or surgery subsequently?
(5) Does long term survival differ between people undergoing the different treatments?
The study is supported by The British Lung Foundation and sponsored by Imperial College, London. By building collaboration, the establishment of the network will also produce a structure that will make evaluation of future bronchoscopic techniques easier bringing innovative treatments into play more quickly.
Coverage
Spatial:
United Kingdom
Typical Age Range:
0-150
Provenance
Temporal
Accrual Periodicity:
Daily
Distribution Release Date:
10 July 2016
Start Date:
01 January 2013
End Date:
10 July 2016
Time Lag:
Not applicable
Accessibility
Access
Access Rights:
In Progress
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Delivery Lead Time:
Not applicable
Data Controller:
Imperial College London
Data Processor:
HUB > BREATHE
Usage
Resource Creators:
Imperial College London
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Languages:
en
Formats:
SQL