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Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 228 days ago

Wales Asthma Observatory

Dataset

Documentation

Description:
The dataset currently contains (1) a table of time periods (defined with start and end dates) during which a patient had any diagnosis of asthma; (2) and table of time periods for asthma severity level (based on prescriptions), asthma exacerbations, asthma-related hospital episodes, and asthma control; and (3) a table for other asthma-related data represented as events (e.g., lung function, blood tests, and A&E visit). Includes an e-cohort of most people with a history of asthma in Wales, derived from the SAIL Databank"s core datasets. Individuals are identified from the Welsh Longitudinal General Practice (WLGP) using several case definitions (e.g., having ever GP asthma diagnosis, asthma treatment in the last 12 months, or both). Data for each patient include essential research-ready asthma-related variables derived from primary and secondary care data, such as asthma treatment step, asthma severity, asthma exacerbations, and asthma-related death. The case definitions and some clinical variables are represented as clinical states. Additional case definitions and variables are actively being added. The WAO dataset is intended to support a wide range of cross-sectional and longitudinal epidemiological asthma studies as well as asthma surveillance, service planning, and health policy.

Coverage

Spatial:
United Kingdom,Wales
Typical Age Range:
0-150
Follow Up:
> 10 Years
Pathway:
The dataset cover asthma outcomes and care captured across several levels of care, including primary, emergency, and secondary care, in addition to asthma-related death.

Provenance

Origin

Purposes:
Disease registry
Sources:
EPR
Collection Situations:
  • Clinic
  • Primary care - Clinic
  • Secondary care - Accident and Emergency
  • Secondary care - Outpatients
  • Secondary care - In-patients

Temporal

Accrual Periodicity:
Annual
Distribution Release Date:
30 June 2020
Start Date:
01 January 1990
End Date:
30 June 2020
Time Lag:
Not applicable

Accessibility

Access

Access Service:
SAIL Gateway https://saildatabank.com
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Delivery Lead Time:
Not applicable
Data Controller:
BREATHE
Data Processor:
BREATHE

Usage

Data Use Limitations:
General research use
Data Use Requirements:
  • Not for profit use
  • Project-specific restrictions
  • Time limit on use
Resource Creators:
Wales Asthma Observatory

Format and Standards

Vocabulary Encoding Schemes:
  • READ
  • ICD10
Languages:
en
Formats:
SQL