Version: 2.0.0 | Published: 8 Oct 2024 | Updated: 229 days ago
Documentation
Description:
Background
Community acquired pneumonia (CAP) is a leading cause of hospital admission, and in older adults has high rates of mortality and complications. CAP is associated with increased long-term mortality and loss of independence for older adults. CAP typically affects older adults with co-morbidities. Complications such as sepsis, and empyema (infected fluid around the lung) prolong hospital admission, result in additional interventions in hospital and have higher mortality than CAP alone. The causative agents for CAP are often poorly identified in real world clinical practice.
The treatment of patients with CAP is complex. Key decisions relate to the antibiotics used, the way antibiotics are given (in a tablet or by a drip) and the place of care (home, hospital and in hospital, a normal ward or intensive care). These data will allow analyses on differing antimicrobial treatments and outcomes, as well as differing pathways of care. This data has been constructed to support machine learning including algorithm generation and testing models.
PIONEER geography
The West Midlands (WM) has a population of 5.9 million and includes a diverse ethnic and socio-economic mix.
EHR. UHB is one of the largest NHS Trusts in England, providing direct acute services and specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds and an expanded 250 ITU bed capacity during COVID. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary and secondary care record (Your Care Connected) and a patient portal “My Health”.
Scope: All patients admitted to hospital from 2000 because of Community Acquired Pneumonia. Longitudinal and individually linked, so that the preceding and subsequent health journey can be mapped and healthcare utilisation prior to and after admission understood. The dataset includes highly granular patient demographics, co-morbidities taken from ICD-10 and SNOMED-CT codes. Serial, structured data pertaining to process of care (timings and admissions), presenting complaints, therapy, ventilation route, assessments components (AMT10, falls, MMS, thrombosis and waterlow), physiology readings (temperature, blood pressure, respiratory rate, NEWS2 score, oxygen saturations, AVPU scale and others), Sample analysis results (bilirubin, urea, albumin, platelets, white blood cells and others) drug administered and all outcomes. Linked images available (radiographs, CT scans, MRI).
Available supplementary data: CAP admission data from 2000 onwards. Matched controls; ambulance, OMOP data, synthetic data.
Available supplementary support: Analytics, Model build, validation and refinement; A.I.; Data partner support for ETL (extract, transform and load) process, Clinical expertise, Patient and end-user access, Purchaser access, Regulatory requirements, Data-driven trials, “fast screen” services.
Coverage
Spatial:
United Kingdom,England,West Midlands
Typical Age Range:
18-115
Follow Up:
1 - 10 Years
Pathway:
Data is representative of the multi-ethnicity population within the West
Midlands (42% non white). Data includes all patients admitted during this
timeframe, with National data Opt Outs applied, and therefore is representative
of admissions to secondary care. Data focuses on in-patient stay in hospital
during the acute episode but can be supplemented on request to include previous
and subsequent hospital contacts (including outpatient appointments) and
ambulance, 111, 999 data.
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
- Secondary care - Accident and Emergency
- Secondary care - In-patients
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
25 April 2022
Start Date:
01 January 2000
End Date:
31 January 2022
Time Lag:
Other
Accessibility
Access
Access Service:
Trusted Research Environments (TRE) are built using Microsoft Azure services and
hosted in the UK to provide research teams a safe, secure and agile environment
which allows users to quickly analyse, interpret and form an enriched view of
primary care information through a range of integrated datasets. Health data
collated from multiple sources is ingested into a secure data lake which will
then allow subsets of data to be made available to research teams on approval of
a data request. Once approved a customer specific TRE is made available with a
standard set of leading analytical tools from Microsoft including Azure
Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale
data warehouses). Specific tools can be provided at an additional cost over the
standard platform data access charge and the PIONEER team will work with you to
determine your exact needs. Access to the TRE is managed using the latest
virtual desktop technology to provide a safe and secure end-user experience. By
utilising leading edge design PIONEER are able to create TREs rapidly to enable
us to service any customer requirement.
Access Request Cost:
www.pioneerdatahub.co.uk/data/data-services-costs/
Delivery Lead Time:
Not applicable
Jurisdictions:
GB-ENG
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Usage
Data Use Limitations:
General research use
Data Use Requirements:
Project-specific restrictions
Resource Creators:
This publication uses data from PIONEER, an ethically approved database and analytical environment (East Midlands Derby Research Ethics 20/EM/0158)
Format and Standards
Vocabulary Encoding Schemes:
- SNOMED CT
- ICD10
Conforms To:
LOCAL
Languages:
en
Formats:
SQL
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
139,462 admissions for community acquired pneumonia from 01/01/2000 to 31/01/2022
139462
Count
24 April 2022