Version: 1.0.0 | Published: 23 Sep 2026 | Updated: 0 days ago
Documentation
Description:
ALLFTD is a comprehensive longitudinal observational study targeting most varieties of frontotemporal lobar degeneration (FTLD). The project is co-directed by Dr. Brad Boeve (Mayo Clinic, Rochester) and Drs. Adam Boxer and Howard Rosen (UCSF). Participants include patients with FTLD spectrum disorders and at-risk family members from genetic FTLD families, including healthy controls. Annual visits include clinical and neuropsychological assessment, biofluid collection, and MR imaging. Data available comes from 802 participants and was generated from CSF (307 participants) and plasma (789 participants). 294 participants contributed both plasma and CSF to the analyzed biospecimens.
Coverage
Spatial:
US
Follow Up:
Unknown
Provenance
Temporal
Accrual Periodicity:
Static
Start Date:
01 January 2026
Time Lag:
Not applicable
Accessibility
Access
Access Rights:
See dataset for details. Access data at:
Usage
Resource Creators:
Hilary Heuer;,;ALLFTD Executive Committee;,;Varsha Krish
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
802
Count
01 January 2026