Version: 0.0.4 | Published: 26 Jul 2023 | Updated: 666 days ago
Summary
DOI Name:
In Progress
Documentation
Description:
The NNRD is a national resource holding real-world clinical data captured in the course of care on all admissions to NHS neonatal units in England, Wales, Scotland and the Isle of Man. Neonatal units submit data through their Electronic Patient Record system supplier. At present, there is information on around one million babies and 10 million days of care in the NNRD.
The NNRD is available to support audit, evaluations, bench-marking, quality improvement and clinical, epidemiological, health services and policy research to improve patient care and outcomes. Data in the NNRD comprise the Neonatal Data Set (ISB1595), an approved NHS Information Standard and include demographic details, daily records of interventions and treatments throughout the neonatal inpatient stay, information on diagnoses and outcomes, and follow-up health status at age two years.
The Neonatal Data Analysis Unit was founded to support the management and development of the National Neonatal Research Database (NNRD) established in 2007 by Professor Modi, and related research.
More information can be found at
https://www.imperial.ac.uk/neonatal-data-analysis-unit
Is Part Of:
No Group
Coverage
Spatial:
England, Wales, Scotland and the Isle of Man
Typical Age Range:
0-4
Physical Sample Availability:
NOT AVAILABLE
Provenance
Temporal
Accrual Periodicity:
QUARTERLY
Distribution Release Date:
04 January 2010
Start Date:
01 January 2008
Accessibility
Access
Access Request Cost:
Delivery Lead Time:
1-2 MONTHS
Jurisdictions:
GB
Data Controller:
Professor Neena Modi, Imperial College London
Data Processor:
Professor Neena Modi, Imperial College London
Usage
Resource Creators:
- We acknowledge the use of the UK National Neonatal Research Database (https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/)
- established and led by Professor Neena Modi and her research group at Imperial College London
- the contribution of neonatal units that collectively form the UK Neonatal Collaborative (https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/contributing-to-the-national-neonatal-research-database/)
- and their lead clinicians.
Format and Standards
Vocabulary Encoding Schemes:
NHS NATIONAL CODES
Conforms To:
OMOP
Languages:
en
Formats:
- SQL
- csv
Enrichment and Linkage
Qualified Relations:
Not Available
Derivations:
Not Available
Origin
Name:
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