Version: 1.0.0 | Published: 19 May 2026 | Updated: 23 days ago
Documentation
Description:
This dataset is extracted from the HSCNI GPIP (General Practice Intelligence Platform). It is a single integrated view of Northern Ireland GP Practice data held in a central database. This includes all 301 GP Practices who use either EMIS or VISION clinical system across the 17 federations. The data shows the key information about the Dementia diagnosis for each patient.
Data is uploaded to a data warehouse periodically in bulk uploads. There are different retention periods for deceased cases based on the system, Vision practices upload a 12 month history of deceased cases while EMIS practices upload a 5 year history. Data outside of these periods is deleted as part of the update process.
Data can be accessed for research upon successful completion of an application to the HSC Honest Broker Service, with approval of the HSC Data Access Committee and the GP Editorial Board (NI).
Data will be provided in line with the 5 Safes Framework, in anonymised format in the secure computing environment provided by the Honest Broker Service. Remote access is available via the HBS Secure e-Research Platform.
The Honest Broker Service application can include additional datasets for linkage (for example prescribing, hospital admission, mortality).
For more information about the Honest Broker Service visit: https://bso.hscni.net/directorates/digital/honest-broker-service/
Coverage
Spatial:
Northern Ireland
Typical Age Range:
0-150
Follow Up:
Unknown
Pathway:
The dataset deals with Dementia diagnosed patients only
Provenance
Origin
Purposes:
- Care
- Administrative
Sources:
EPR
Collection Situations:
Primary care - Clinic
Temporal
Accrual Periodicity:
Annual
Start Date:
01 January 2010
Time Lag:
Less than 1 week
Accessibility
Access
Access Rights:
Access Service:
Remote access can now be granted via an HSCNI tenancy of the UK Secure
e-Research Platform (UK SeRP), the HBS still offer the physical safe setting in
Belfast for local research.
Access Request Cost:
Delivery Lead Time:
2-6 months
Jurisdictions:
- UK
- GB-NIR
Data Controller:
Northern Ireland GP Practices with oversight of GP Editorial Board
Data Processor:
Health And Social Care Northern Ireland Honest Broker Service
Usage
Data Use Limitations:
Research use only
Data Use Requirements:
Project-specific restrictions
Resource Creators:
ACKNOWLEDGMENT The authors would like to acknowledge the help provided by the staff of the Honest Broker Service (HBS) within the Business Services Organisation Northern Ireland (BSO) who have provided safe access to the anonymised data which underpins this work. The HBS is funded by the BSO and the Department of Health (DoH). The authors alone are responsible for the interpretation of the data and any views or opinions presented are solely those of the author and do not necessarily represent those of the BSO.
Format and Standards
Vocabulary Encoding Schemes:
SNOMED CT
Conforms To:
LOCAL
Languages:
en
Formats:
- text
- csv