Version: 1.0.0 | Published: 24 Jul 2025 | Updated: 267 days ago
Documentation
Associated Media:
Description:
The NURTuRE project was devised to create a national kidney biobank as recommended in the UK Renal Research Strategy 2016. To work towards achieving this NURTuRE will:
- Create a national Kidney Bio Bank for collection and storage of biological samples from 3,000 CKD patients and up to 800 NS patients, to provide a strategic resource for fundamental and translational research.
- Develop and implement proactive UK protocol driven cohort studies in CKD and NS to investigate determinants of and risk factors for clinically important adverse outcomes.
- Engage patient cohorts, with consent to approach for any future research study.
NURTuRE Objectives:
- The provision of comprehensive clinical and laboratory data from cohort studies.
- The provision of high quality bio-samples with centralised storage/retrieval.
- To carry out core biomarker analysis of biopsy specimens in biofluids of all patients recruited and parallel assessment.
- Follow-up specimen collection.
Prospective applicants will need to contact NURTuRE and apply to the NURTuRE Scientific Board for permission to use this dataset.
Biological samples availability - Samples are available via the NURTuRE biobank - https://nurturebiobank.org/
Coverage
Spatial:
Wales, England, Scotland
Typical Age Range:
0-150
Follow Up:
Unknown
Provenance
Origin
Purposes:
Research cohort
Sources:
EPR
Temporal
Accrual Periodicity:
Irregular
Start Date:
30 September 2017
End Date:
01 January 2026
Time Lag:
Other
Accessibility
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP).
Following approval through safeguard processes, access to project-specific data
within the secure environment is permitted using two-factor authentication.
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Delivery Lead Time:
2-6 months
Jurisdictions:
UK
Data Controller:
SAIL
Data Processor:
SAIL
Usage
Data Use Limitations:
General research use
Resource Creators:
NURTuRE
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
SQL database table
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
740
Count
16 April 2026