Documentation
Associated Media:
Description:
This dataset is a merged dataset of the existing datasets already published. This dataset contains all the columns made available within the individual datasets but as one large amalgamated dataset. This provides a longitudinal linked dataset of NWL patients to support pathway analysis, population health analysis and research analytics that requires data from various care settings.
Coverage
Spatial:
United Kingdom,England,London,Brent,Ealing,Hammersmith and
Fulham,Harrow,Hillingdon,Hounslow,Kensington and Chelsea,Westminster
Typical Age Range:
0-150
Follow Up:
> 10 Years
Pathway:
This dataset is representative of the patient pathway as we have data from all
care settings (primary care, acute, mental health, community and social care).
We also have data for all disease areas and hence able to track the pathway for
all diseases.
Provenance
Origin
Purposes:
Research cohort
Sources:
EPR
Collection Situations:
- Clinic
- Primary care - Clinic
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
- Services
- Community
- Home
- Prescribing - Community pharmacy
Temporal
Accrual Periodicity:
Monthly
Distribution Release Date:
30 January 2020
Start Date:
31 March 2015
Time Lag:
1-2 months
Accessibility
Access
Access Rights:
Access Service:
Researchers will have access to a secure workspace via an airlocked Azure
Virtual Desktop with a specific username and password. Researchers will get
specific access to a relevant subset of the datasets that are present in the SDE
catalogue for their project and will be able to carry out their research within
the safe haven. There are restrictions applied which prevent the researchers
from taking data out of the safe haven. Once the research is completed the
London SDE admin team will need to be contacted for any requests to egress
summary analysis out of the safe haven which will not breach 5 safe standards.
Access Request Cost:
In Progress
Delivery Lead Time:
1-2 months
Data Controller:
Joint data controller model across London: North Central London Integrated Care
System (NCL ICS), Central London Integrated Care System (CL ICS), East London
Integrated Care System (EL ICS), West London Integrated Care System (WL ICS),
South London Integrated Care System (SL ICS)
Data Processor:
The data processor for the London Secure Data Environment (SDE) is primarily
managed by OneLondon, a partnership of London"s five integrated care systems
(ICSs) and three health innovation networks.
Usage
Data Use Limitations:
No restriction
Data Use Requirements:
- Collaboration required
- Institution-specific restrictions
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creators:
NHS NWL ICS;,;London SDE
Format and Standards
Vocabulary Encoding Schemes:
- LOCAL
- OPCS4
- READ
- SNOMED CT
- NHS NATIONAL CODES
- ODS
- ICD10
Conforms To:
- NHS DATA DICTIONARY
- LOCAL
- OTHER
Languages:
en
Formats:
- Excel
- SQL
- Tableau
- R
Enrichment and Linkage
Qualified Relations:
This can be linked to: Accident and Emergency Outpatient Care High Cost drugs Patient level data Primary care events Primary care prescriptions Adult
Derivations:
Long Term Conditions Electronic Frailty Index Q-Admissions Patient Segments Risk Segments
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Total events, all population
685541152
Count
02 November 2022
Persons
Population
2653250
Count
08 December 2020
Persons
All Registered population
4321099
count
02 November 2022