Documentation
Associated Media:
Description:
When a patient or service user is treated or cared for, information is collected which supports their treatment. This information is also useful to commissioners and providers of NHS-funded care for "secondary" purposes - purposes other than direct or "primary" clinical care - such as:
- Healthcare planning
- Commissioning of services
- National Tariff reimbursement
- Development of national policy
SUS is a secure data warehouse that stores this patient-level information in line with national standards and applies complex derivations which support national tariff policy and secondary analysis.
Access to SUS is managed using Role-Based Access Control (RBAC) which grants appropriate access levels to identifiable, anonymised or pseudonymised data based on the users job role.
Coverage
Spatial:
United Kingdom,England,London,Brent,Ealing,Hammersmith and
Fulham,Harrow,Hillingdon,Hounslow,Kensington and Chelsea,Westminster
Typical Age Range:
0-150
Follow Up:
> 10 Years
Pathway:
This is the patient index table generated from primary care registrations. Each
patient will have an unique patient key that can be used to link to all other
metadata available through London SDE.
Provenance
Origin
Purposes:
- Administrative
- Care
- Other
Sources:
EPR
Collection Situations:
Primary care - Clinic
Temporal
Accrual Periodicity:
Biweekly
Distribution Release Date:
18 December 2019
Start Date:
01 January 2015
Time Lag:
1-2 weeks
Accessibility
Access
Access Rights:
Access Service:
Researchers will have access to a secure workspace via an airlocked Azure
Virtual Desktop with a specific username and password. Researchers will get
specific access to a relevant subset of the datasets that are present in the SDE
catalogue for their project and will be able to carry out their research within
the safe haven. There are restrictions applied which prevent the researchers
from taking data out of the safe haven. Once the research is completed the
London SDE admin team will need to be contacted for any requests to egress
summary analysis out of the safe haven which will not breach 5 safe standards.
Access Request Cost:
In Progress
Delivery Lead Time:
1-2 months
Data Controller:
Joint data controller model across London: North Central London Integrated Care
System (NCL ICS), Central London Integrated Care System (CL ICS), East London
Integrated Care System (EL ICS), West London Integrated Care System (WL ICS),
South London Integrated Care System (SL ICS)
Data Processor:
The data processor for the London Secure Data Environment (SDE) is primarily
managed by OneLondon, a partnership of London"s five integrated care systems
(ICSs) and three health innovation networks.
Usage
Data Use Limitations:
No restriction
Data Use Requirements:
- Collaboration required
- Institution-specific restrictions
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creators:
NHS NWL ICS;,;London SDE
Format and Standards
Vocabulary Encoding Schemes:
OTHER
Conforms To:
LOCAL
Languages:
en
Formats:
- Excel
- SQL
- Tableau
- R
Enrichment and Linkage
Qualified Relations:
This can be linked to: Accident and Emergency Admitted Patient Care Outpatient Care High Cost drugs Primary care events Primary care prescriptions Ad
Derivations:
Long Term Conditions Electronic Frailty Index Q-Admissions Patient Segments Risk Segments
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Population
2684730
Count
08 December 2020
Persons
Registered population
2743697
count
20 October 2022