Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 227 days ago
Documentation
Associated Media:
Description:
Ventilatory strategies and outcomes for patients acutely admitted to hospital
Dataset 14.0
Version 1.0 15.2.2021
Background.
Acute respiratory failure is commonly encountered in the emergency department (ED). Early treatment can have positive effects on long-term outcome. Non-invasive ventilation is commonly used for patients with respiratory failure during acute exacerbations of chronic obstructive lung disease and congestive heart failure. For other patients, including neuromuscular dysfunction, mechanical ventilation may be needed. For refractory hypoxemia, new rescue therapies have emerged to help improve the oxygenation, and in some cases mortality. This dataset summarises the demography, admitting complaint, serial physiology, treatments and ventilatory strategies in patients admitted with hypoxaemia. Management options and rescue therapies including extracorporeal membrane oxygenation are included.
PIONEER geography
The West Midlands (WM) has a population of 5.9 million & includes a diverse ethnic & socio-economic mix. There is a higher than average percentage of minority ethnic groups. WM has a large number of elderly residents but is the youngest population in the UK. Each day >100,000 people are treated in hospital, see their GP or are cared for by the NHS.
EHR. University Hospitals Birmingham NHS Foundation Trust (UHB) is one of the largest NHS Trusts in England, providing direct acute services & specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds & 100 ITU beds. ITU capacity increased to 250 beds during the COVID pandemic. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham Systems), a shared primary & secondary care record (Your Care Connected) & a patient portal “My Health”. The electronic record captures ventilatory parameters.
Scope: All hospitalised patients with hypoxaemia requiring ventilatory support from 2000 onwards. The dataset includes highly granular patient demographics & co-morbidities taken from ICD-10 & SNOMED-CT codes. Serial, structured data pertaining to care process (timings, staff grades, specialty review, wards), severity, ventilatory requirements, acuity, all physiology readings (pulse, blood pressure, respiratory rate, oxygen saturations), all blood results, microbiology, all prescribed & administered treatments (fluids, antibiotics, inotropes, vasopressors, organ support), all outcomes.
Available supplementary data:
Synthetic data. Post discharge care contacts.
Available supplementary support: Analytics, Model build, validation & refinement; A.I.; Data partner support for ETL (extract, transform & load) process, Clinical expertise, Patient & end-user access, Purchaser access, Regulatory requirements, Data-driven trials, “fast screen” services.
Coverage
Spatial:
United Kingdom,England,West Midlands
Typical Age Range:
10-110
Follow Up:
Other
Pathway:
The West Midlands (WM) has a population of 5.9million & includes a diverse
ethnic, socio-economic mix. There is a higher than average percentage of
minority ethnic groups with Birmingham having a population which is >40%
non-white. WM has a large number of elderly residents but Birmingham is one of
the youngest cities in the UK. There is social deprivation and Birmingham’s
population suffers with particularly high rates of illness; including
cerebrovascular Disease, physical inactivity, obesity, smoking, hypertension,
ischaemic heart disease & diabetes. There are also high levels of rare diseases,
especially immunometabolic conditions. The patients included in this dataset are
representative of this diverse population and also include a wide age-range.
University Hospitals Birmingham NHS Foundation Trust (UHB) is one of the largest
NHS Trusts in England, providing direct acute services & specialist care across
four hospital sites, with 2.2 million patient episodes per year, 2750 beds & 100
ITU beds. UHB runs a fully electronic healthcare record (EHR) (PICS; Birmingham
Systems), a shared primary & secondary care record (Your Care Connected) & a
patient portal “My Health”. The UHB ITU is divided into areas of speciality,
including general ITU, but also liver, cardiothoracic and neurological
designated units, which focus on patients with these specific organ-support
issues. This dataset focuses on those patients who required a higher level of
medical support and/or ventilatory support for any reason or purpose. It
includes all ventilator settings, oxygen support and all organ support
treatments. It assesses infections associated with ITU, all routine and
specialist tests, all investigations, treatments and results. It can be
supplemented with data preceding and after the acute event, to understand risks
of susceptibility and long-term outcomes. Although primarily secondary care,
this dataset can be supplemented with ambulance and primary care data on
request. PIONEER can also offer synthetic data, images and access to a secure
Trusted Research Environment for analytics and AI. PIONEER can assist with
analytics, model build, validation & refinement; A.I.; Data partner support for
ETL (extract, transform & load) process, Clinical expertise, Patient & end-user
access, Purchaser access, Regulatory requirements, Data-driven trials, “fast
screen” services.
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
- Secondary care - Accident and Emergency
- Secondary care - In-patients
Temporal
Accrual Periodicity:
Quarterly
Distribution Release Date:
01 November 2021
Start Date:
05 April 2015
End Date:
17 November 2020
Time Lag:
Variable
Accessibility
Access
Access Service:
Trusted Research Environments (TRE) are built using Microsoft Azure services and
hosted in the UK to provide research teams a safe, secure and agile environment
which allows users to quickly analyse, interpret and form an enriched view of
primary care information through a range of integrated datasets. Health data
collated from multiple sources is ingested into a secure data lake which will
then allow subsets of data to be made available to research teams on approval of
a data request. Once approved a customer specific TRE is made available with a
standard set of leading analytical tools from Microsoft including Azure
Databricks, Azure Machine Learning, Azure SQL and Azure Synapse (for large-scale
data warehouses). Specific tools can be provided at an additional cost over the
standard platform data access charge and the PIONEER team will work with you to
determine your exact needs. Access to the TRE is managed using the latest
virtual desktop technology to provide a safe and secure end-user experience. By
utilising leading edge design PIONEER are able to create TREs rapidly to enable
us to service any customer requirement.
Access Request Cost:
www.pioneerdatahub.co.uk/data/data-services-costs/
Delivery Lead Time:
Not applicable
Data Controller:
University Hospitals Birmingham NHS Foundation Trust
Usage
Data Use Limitations:
General research use
Data Use Requirements:
Project-specific restrictions
Resource Creators:
This publication uses data from PIONEER, an ethically approved database and analytical environment (East Midlands Derby Research Ethics 20/EM/0158)
Format and Standards
Vocabulary Encoding Schemes:
- OPCS4
- SNOMED CT
- ICD10
Conforms To:
LOCAL
Languages:
en
Formats:
SQL
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
33,208 admissions ranging from 04-06-2015 until 17-11-2020
33208
Count
01 November 2021