MDW - Discover Metadata Catalogue

MDW Discover  > NUH Cancer Outcomes and Services Data set (COSD) @ 1481

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London SDE

West Midlands SDE

Kent, Medway & Sussex SDE

MDW - Discover

Secondary uses information required to support national cancer registration and associated analysis (at local, regional, national, and international level), as well as other national cancer audit programmes.

HDR UK

Study_No

Date

Date_of_biopsy

Height

Waist_circumference_cm

Weight_in_KGs

Hip_circumference_cm

Gender

Units_of_alcohol

Hospital_of_biopsy

histopathology

Diabetes

Hypertension

High_cholesterol

Angina

Stroke

CABG

Angioplasty

Stent

Fibrosis stage_CRN

Percentage fibrosis

Last followup date

Decompensation

Date of Decompensation

Death

Date of Death

MRker

This is the TRANSFORMATION DIAGNOSIS using the SNOMED International / SNOMED CT code for the cell type of the tumour recorded as part of a Cancer Care Spell. This can be recorded as well as or instead of MORPHOLOGY (ICD-O-3) TRANSFORMATION.

NPP_CR7000_TRANS_MORPHOLOGY_SNOMED_TRANS

The version of SNOMED used to encode MORPHOLOGY (SNOMED) TRANSFORMATION

NPP_CR7030_TRANS_SNOMED_VERSION_CURRENT_TRANS

Person&amp;amp;amp;amp;amp;#039;s gender as self-declared (or inferred by observation for those unable to declare their PERSON STATED GENDER).

CR3170_PERSON_STATED_GENDER_CODE

Person&amp;amp;amp;amp;amp;#039;s sexual orientation as self-declared at the time of the PATIENT DIAGNOSIS.

This complies with the information standard DCB2094.

CR6840_PERSON_SEXUAL_ORIENTATION_CODE_AT_DIAGNOSIS

GENERAL MEDICAL PRACTITIONER (SPECIFIED) is the GENERAL MEDICAL PRACTITIONER PPD CODE of the GENERAL MEDICAL PRACTITIONER specified by the PATIENT.

This GENERAL MEDICAL PRACTITIONER works within the General Medical Practitioner Practice with which the PATIENT is registered.

CR0110_GENERAL_MEDICAL_PRACTITIONER_SPECIFIED

The GENERAL MEDICAL PRACTICE (PATIENT REGISTRATION) is an ORGANISATION CODE. This is the code of the GP Practice that the PATIENT is registered with.

CR0120_GENERAL_MEDICAL_PRACTICE_CODE_PATIENT_REGISTRATION

The ethnicity of a PERSON, as specified by the PERSON. The 16+1 ethnic data categories defined in the 2001 census is the national mandatory standard for the collection and analysis of ethnicity.

(The Office for National Statistics has developed a further breakdown of the group from that given, which may be used locally.)

CR0150_ETHNIC_CATEGORY

The ethnicity of a PERSON, as specified by the PERSON.

ETHNIC CATEGORY 2021 is the classification used for the 2021 census.

Note: This item has not been approved by the Data Alliance Partnership Board. It has been introduced to provide advance notice to data providers and system suppliers of the intention to report this item at a later date. This item should not be submitted until further development by NHS England has been undertaken.

CR9060_ETHNIC_CATEGORY_2021

This identifies the source of referral of each Consultant Out-Patient Episode.

(See User Guide for further details)

PP_CR1600_SOURCE_OF_REFERRAL_OP

This is the date that the PATIENT is first seen in the Trust that receives the first referral.

PP_CR0230_DATE_FIRST_SEEN

A code which identifies the&amp;amp;amp;amp;amp;nbsp;PROFESSIONAL REGISTRATION BODY for the Consultant or health care professional who first sees the patient following the initial referral which leads to the cancer diagnosis.

PP_CR7300_PROF_REG_ISSUER_CODE_CONS_FIRST_SEEN

The registration identifier allocated by a&amp;amp;amp;amp;amp;nbsp;Professional Registration Body for the Consultant or health care professional who first sees the patient following the initial referral which leads to the cancer diagnosis.

PP_CR7310_PROF_REG_ENTRY_ID_CONS_FIRST_SEEN

The ORGANISATION IDENTIFIER of the Organisation Site of the Health Care Provider at the first contact with the PATIENT.

PP_CR1410_ORG_SITE_PROV_FIRST_SEEN

This is the date that the PATIENT is first seen by the appropriate specialist for cancer care within a Cancer Care Spell. This is the PERSON or PERSONS who are most able to progress the diagnosis of the primary tumour.

PP_CR1360_DATE_FIRST_SEEN_CANCER_SPECIALIST

The ORGANISATION IDENTIFIER of the Organisation Site where the PATIENT is first seen by an appropriate cancer specialist on the DATE FIRST SEEN (CANCER SPECIALIST).

PP_CR1400_ORG_SITE_ID_PROV_FIRST_CANCER_SPECIALIST

(Non Primary Cancer Pathway only.)
This identifies the source of referral for a non primary cancer pathway.

NPP_CR0300_SOURCE_OF_REFERRAL

NPP_CR7400_DATE_FIRST_SEEN

The ORGANISATION IDENTIFIER of the Organisation Site of the Health Care Provider at the first contact with the PATIENT, where the patient is on a non primary cancer pathway.

NPP_CR7410_ORG_SITE_ID_PROV_FIRST_SEEN

This is the ORGANISATION IDENTIFIER of the Organisation site where the diagnostic procedure took place.

CR7500_DIAG_PROC1_ORG_SITE_ID

The DATE the diagnostic procedure was carried out.

CR7510_DIAG_PROC1_PROCEDURE_DATE

Record the diagnostic procedure(s) carried out using OPCS. This maybe recorded in addition to DIAGNOSTIC PROCEDURE (SNOMED CT)

CR7520_DIAG_PROC1_OPCS1

CR7520_DIAG_PROC1_OPCS2

CR7520_DIAG_PROC1_OPCS3

CR7520_DIAG_PROC1_OPCS4

CR7520_DIAG_PROC1_OPCS5

Record the diagnostic procedure(s) carried out using SNOMED CT. This maybe recorded in addition to DIAGNOSTIC PROCEDURE (OPCS).

CR7530_DIAG_PROC1_SNOMEDCT1

CR7530_DIAG_PROC1_SNOMEDCT2

CR7530_DIAG_PROC1_SNOMEDCT3

CR7530_DIAG_PROC1_SNOMEDCT4

CR7530_DIAG_PROC1_SNOMEDCT5

Record the outcome of the Sentinel Node Biopsy

CR7540_SENTINEL_NODE_BIOPSY_OUTCOME1

CR7500_DIAG_PROC2_ORG_SITE_ID

CR7510_DIAG_PROC2_PROCEDURE_DATE

CR7520_DIAG_PROC2_OPCS1

CR7520_DIAG_PROC2_OPCS2

CR7520_DIAG_PROC2_OPCS3

CR7520_DIAG_PROC2_OPCS4

CR7520_DIAG_PROC2_OPCS5

CR7530_DIAG_PROC2_SNOMEDCT1

CR7530_DIAG_PROC2_SNOMEDCT2

CR7530_DIAG_PROC2_SNOMEDCT3

CR7530_DIAG_PROC2_SNOMEDCT4

CR7530_DIAG_PROC2_SNOMEDCT5

CR7540_SENTINEL_NODE_BIOPSY_OUTCOME2

CR7500_DIAG_PROC3_ORG_SITE_ID

CR7510_DIAG_PROC3_PROCEDURE_DATE

CR7520_DIAG_PROC3_OPCS1

CR7520_DIAG_PROC3_OPCS2

CR7520_DIAG_PROC3_OPCS3

CR7520_DIAG_PROC3_OPCS4

CR7520_DIAG_PROC3_OPCS5

CR7530_DIAG_PROC3_SNOMEDCT1

CR7530_DIAG_PROC3_SNOMEDCT2

CR7530_DIAG_PROC3_SNOMEDCT3

CR7530_DIAG_PROC3_SNOMEDCT4

CR7530_DIAG_PROC3_SNOMEDCT5

CR7540_SENTINEL_NODE_BIOPSY_OUTCOME3

The ORGANISATION IDENTIFIER of the Organisation site where the PATIENT DIAGNOSIS took place.

PP_CR6230_ORG_SITE_ID_OF_DIAG

This is the method used to confirm the cancer.

PP_CR0390_BASIS_OF_DIAG_CANCER

The morphology code for the diagnosed cancer as defined by ICD-O-3. This can be recorded as well as or instead of MORPHOLOGY (SNOMED).

PP_CR0180_MORPHOLOGY_ICD_O_3

This is the PATIENT DIAGNOSIS using the SNOMED International / SNOMED CT code for the cell type of the tumour recorded as part of a Cancer Care Spell. This can be recorded as well as or instead of MORPHOLOGY (ICD-O-3).

PP_CR6400_CURR_MORPHOLOGY_SNOMED_DIAG

The version of SNOMED used to encode MORPHOLOGY (SNOMED) DIAGNOSIS

PP_CR6490_CURR_SNOMED_VERSION_DIAG

The topographical site code for the tumour as defined by ICD-O-3. This will normally be derived by Registries.

PP_CR0480_TOPOGRAPHY_ICD_O_3

Record the Ki67 percentage

This is a pilot data item, required to support the accurate calculation of Grade.

This is a requirement for Neuroendocrine tumours (NET), optional for all other tumour types.

PP_CR9010_KI67

GRADE OF DIFFERENTIATION (AT DIAGNOSIS) is the definitive grade of the Tumour at the time of PATIENT DIAGNOSIS.

PP_CR0410_GRADE_OF_DIFFERENTIATIONAT_DIAG

A World Health Organisation classification indicating a PERSON&amp;amp;amp;amp;amp;#039;s status relating to activity / disability.

PP_CR0510_PERFORMANCE_STATUS_ADULT

DIAGNOSIS CODE (SNOMED CT) is the SNOMED CT concept ID which is used to identify the clinical diagnosis given to the patient.

PP_CR6830_DIAGNOSIS_CODE_SNOMEDCT

Indicate the type of metastatic disease diagnosed by the clinical team

PP_CR6960_DIAG_METASTATIC_TYPE_1

The site of the metastatic disease, if any, at diagnosis. 

More than one site can be recorded

PP_CR6970_DIAG_METASTATIC_SITE_1

PP_CR6960_DIAG_METASTATIC_TYPE_2

PP_CR6970_DIAG_METASTATIC_SITE_2

PP_CR6960_DIAG_METASTATIC_TYPE_3

PP_CR6970_DIAG_METASTATIC_SITE_3

PP_CR6960_DIAG_METASTATIC_TYPE_4

PP_CR6970_DIAG_METASTATIC_SITE_4

Additional comments on diagnosis where coding is difficult or imprecise. 
(Examples of this would be:
 &amp;amp;amp;amp;amp;quot;papillary glioneuronal tumour&amp;amp;amp;amp;amp;quot; or &amp;amp;amp;amp;amp;quot;angiocentric glioma&amp;amp;amp;amp;amp;quot; to specify recently described diagnoses which do not have ICD10 or ICD-O-3 coding. 
&amp;amp;amp;amp;amp;quot;anaplastic ependymoma&amp;amp;amp;amp;amp;quot; 
or 
&amp;amp;amp;amp;amp;quot;ependymoblastoma&amp;amp;amp;amp;amp;quot; to distinguish between these two diagnoses which may have different treatment decisions or outcomes but which cannot be distinguished in ICD10 or ICD-O-3 coding.)

PP_CR7600_PRIMARY_DIAG_SUBSIDIARY_COMMENT

Types (ICD10 codes) of other significant conditions (e.g. Down Syndrome, NF1, Fanconi anaemia) which may predispose to cancer or influence treatment. Possible multiple entries.

PP_CR7610_SECONDARY_DIAG_ICD1

PP_CR7610_SECONDARY_DIAG_ICD2

Additional comments on other significant conditions where coding is difficult or imprecise. (For example &amp;amp;amp;amp;amp;quot;NF1&amp;amp;amp;amp;amp;quot; or &amp;amp;amp;amp;amp;quot;NF2&amp;amp;amp;amp;amp;quot; to distinguish between these two distinct conditions which may have different treatment decisions or outcomes but cannot be coded separately.)

PP_CR7620_OTHER_SIGNIFICANT_DIAG_SUBSIDIARY_COMMENT

Indicate whether there is a possible or confirmed familial cancer syndrome

PP_CR7630_FAMILIAL_CANCER_SYNDROME

Specifies or describes familial cancer syndrome where Familial Cancer Syndrome is coded as &amp;amp;amp;amp;amp;quot;Yes&amp;amp;amp;amp;amp;quot; or &amp;amp;amp;amp;amp;quot;Possible&amp;amp;amp;amp;amp;quot;. 
(For example &amp;amp;amp;amp;amp;quot;Li-Fraumeni&amp;amp;amp;amp;amp;quot;, &amp;amp;amp;amp;amp;quot;Rhabdoid tumour predisposition syndrome&amp;amp;amp;amp;amp;quot; or &amp;amp;amp;amp;amp;quot;Biallelic PMS2 mutation&amp;amp;amp;amp;amp;quot; to identify distinct syndromes which may have different treatment decisions or outcomes but cannot be coded separately.)

PP_CR7640_FAMILIAL_CANCER_SYNDROME_SUBSIDIARY_COMMENT

Indicate whether there is a possible or confirmed Functional syndrome classification

PP_CR9020_FUNCTIONAL_SYNDROME_CLASS_INDICATOR

Specify the type of functional syndrome classification the patient is diagnosed with.

More than one is possible if applicable and this item is for Neuroendocrine tumours (NET) only.

PP_CR9030_FUNCTIONAL_SYNDROME_CLASS_TYPE1

PP_CR9030_FUNCTIONAL_SYNDROME_CLASS_TYPE2

PP_CR9030_UNKNOWN_FUNCTIONAL_SYNDROME_CLASS_TYPE1

Specify any other functional syndrome classification type

PP_CR9040_UNKNOWN_OTHER_FUNCTIONAL_SYNDROME_CLASS_TYPE1

PP_CR9030_UNKNOWN_FUNCTIONAL_SYNDROME_CLASS_TYPE2

PP_CR9040_UNKNOWN_OTHER_FUNCTIONAL_SYNDROME_CLASS_TYPE2

PP_CR9030_UNKNOWN_FUNCTIONAL_SYNDROME_CLASS_TYPE3

PP_CR9040_UNKNOWN_OTHER_FUNCTIONAL_SYNDROME_CLASS_TYPE3

PP_CR6960_PROG1_METASTATIC_TYPE1

PP_CR6970_PROG1_METASTATIC_SITE1

PP_CR6960_PROG1_METASTATIC_TYPE2

PP_CR6970_PROG1_METASTATIC_SITE2

PP_CR6960_PROG1_METASTATIC_TYPE3

PP_CR6970_PROG1_METASTATIC_SITE3

PP_CR6960_PROG1_METASTATIC_TYPE4

PP_CR6970_PROG1_METASTATIC_SITE4

PP_CR6960_PROG2_METASTATIC_TYPE1

PP_CR6970_PROG2_METASTATIC_SITE1

ONCO.ONCO_COSD_INT_RESEARCH

Secondary uses information required to support national cancer registration and associated analysis, as well as other national cancer audit programmes.

NUH Cancer Outcomes and Services Data set (COSD)

Documentation

Coverage

Provenance

Origin

Temporal

Accessibility

Access

Usage

Format and Standards

Observations

Origin