Version: 1.0.0 | Published: 8 Sep 2025 | Updated: 90 days ago
Histo-Mol GBM Collaborative (2021) Dataset
Dataset
Documentation
Description:
The Histo-Mol GBM Collaborative (2021) dataset is an international retrospective multi-centre cohort study of pathologically confirmed glioblastoma patients diagnosed during a 1-year time-period.
This dataset contains data from the majority of United Kingdom Neuro-oncology centres (44/49), every neuro-oncology centre in New Zealand (5/5) and the Republic of Ireland (2/2), plus 1 centre from Australia.
This dataset provides a national level overview of pathologically confirmed glioblastoma patients diagnosed between 01/01/2021 and 31/12/2021 with granular individual patient data comprising demographics, presenting symptoms, tumour characteristics, full treatment characteristics, post-treatment surveillance details, recurrence information including treatment at all recurrences, and survival data.
Coverage
Spatial:
United Kingdom, Republic of Ireland, New Zealand, Australia
Typical Age Range:
18-90
Follow Up:
1 - 10 Years
Pathway:
Retrospective dataset covering the secondary care patient pathway for
glioblastoma patients. Data collected from the neurosurgical and/or
neuro-oncology centre.
Provenance
Origin
Purposes:
Research cohort
Sources:
- Paper-based
- EPR
Collection Situations:
- Secondary care - Outpatients
- Secondary care - In-patients
Temporal
Accrual Periodicity:
Static
Distribution Release Date:
07 September 2025
Start Date:
01 January 2021
End Date:
31 December 2021
Time Lag:
Not applicable
Accessibility
Access
Access Rights:
In Progress
Access Service:
No direct access to the raw data is available due to data protection
requirements. Summary data and targeted analysis can be provided through
development of a collaboration with the project lead.
Access Request Cost:
None
Delivery Lead Time:
Variable
Jurisdictions:
UK
Data Controller:
Dr Stephen Robinson on behalf of the Histo-Mol GBM Collaborative
Data Processor:
Histo-Mol GBM Collaborative
Usage
Data Use Limitations:
General research use
Data Use Requirements:
Collaboration required
Resource Creators:
On behalf of the Histo-Mol GBM Collaborative
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
Excel
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of people who have died
1614
Overall Survival
14 May 2025
Persons
Number of individuals in the dataset
1857
Count
07 September 2025